Chari malformation and scoliosis

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Have 5 yr old granddaughter diagnosed with chari malformation and a 40 degree curviture of the spine. Will be having surgery to correct the malformation but she has fluid in her spine that caused the scoliosis. Does anyone know if scoliosis will become worse or get better with the fluid being drained?

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  • Posted

    Llee

    I am so sorry you have to go through this, its hard with adults but with kids, it just breaks my heart. I wish I had the answers. I have found  https://scoliosiscarecenters.com/ to be a really helpful source for me, My mother suffers from Scoliosis. Best of luck.

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