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Exercise

Posted , 5 users are following.

Cloch47
Cloch47

Hi everyone, I'm very new to all this and I'm finding it hard to accept it. I

was recently diagnosed with cutaneous lupus and Sjogren's. The

symptom that affects me most is the awful fatigue. Before this all kicked

off I was very active- 2 aerobic and 3 dance classes a week but I find it

impossible to even do 1 class. I feel that it is important to exercise, will I

ever get back to my old self again?

1 like, 11 replies

11 Replies

  • Sue1247
    Sue1247 Cloch47

    Posted

    You will find Simba AfricAn potato tablets from the Little Herbal Company a great help. They take a couple of months to work but are very effective against fatigue.
  • sally83545
    sally83545 Cloch47

    Posted

    Cloch,

    The fatigue gets better once  the Plaquenil  kicks in.

    Maybe you could experiment with Yoga and Pilates until you are feeling stonger. I don't know if you will be able to go back to the classes you had before time will tell. I have heard of some people who are stiil able to jog and long distance run despite their condition. Now that you have a diagnosis you can start working to find out what changes you can make to feel like your old self again. Be patient it gets better! Good luck,

    Sally

    • Cloch47
      Cloch47 sally83545

      Posted

      Thanks Sally for your suggestions, I did wonder about yoga.

      One of my faults is impatience, so I guess I'll have to tackle

      that.

  • christine26761
    christine26761 Cloch47

    Posted

    I do all my excercise in a heated indoor swimming pool, admittedly I feel quite tired after but it's the only way I can excersise, might be worth a try in the mean time....as once your meds kick in you won't feel so tired...... I do this it this way for different reasons..where's there's a will there's always a way..hey.? .as they say: .use it..or lose it.....

    be blessed ..:-) xxx

    • Cloch47
      Cloch47 christine26761

      Posted

      Thanks Christine but I'm ashamed to admit that I can't swim!

      I have tried to learn many times but failed miserably. I thought

      that I might start with walking and work up to a bit of power

      walking in time. I just so miss my dancing.

    • christine26761
      christine26761 Cloch47

      Posted

      I used to be a really strong swimmer, but my body just won't let me swim anymore, so I just walk up and down the pool and do a few excercises with my spaghetti- (don't know another name for it) I out it between my legs and move like I'm riding a bike...it would be really good for a non swimmer because it keeps you afloat....we can nearly all swim over here.-Australia...my dad actually taught us all to swim in the surf..now that was hard..apparently the specialist said..even if you could only be in the pool and do nothing it's worth it..because just the water lapping up to your body..helps greatly with circulation...be blessed Cloch..have a wonderful day..:-) xxx
    • Cloch47
      Cloch47 christine26761

      Posted

      Sounds good Christine, I shall add that to my "Things to try list".

      I suppose it's just experimenting to find out what type of

      exercise is going to suit me, but I think that I might have to

      accept that my life is going to have to change somewhat.

      Thanks again.

    • christine26761
      christine26761 Cloch47

      Posted

      That is sooo right Cloch, but a change doesn't  have to be a bad one..be blessed..:-) xxx
  • morelia100
    morelia100 Cloch47

    Posted

    Hi Cloch,

    It has been about 1.5 years since I was diagnosed with Sjogrens. I don't know much about Lupus or how it might affect your energy. I do know that I was able to improve and even eliminate some of my symptoms through eating healthy and eliminating some things from my diet like sugar and dairy, etc. I typically have been an active person and was running every week and couldn't understand why suddenly I felt like I needed an afternoon nap every day and wanted to go to bed early I was so tired. However I am happy to report that my energy levels are close to normal if not normal and I have enough energy to exercise and don't feel the need to nap during the day. One word of caution--i have read that although exercise is important for people with autoimmune diseases, it is just as important not to over- exercise because this could cause more stress on your body. Also if you want to go the natural route or do a combination, there is so much information on the internet. I am also happy to share the books or more specific details about my "get-better" plan, that I have discovered during my research. Hang in there. There is hope!

    • Cloch47
      Cloch47 morelia100

      Posted

      Thanks Morelia, its so comforting to speak to people who

      understand. You are absolutely spot on when you talk about

      overdoing it. For instance, it was my birthday last week and

      my husband arranged a trip to London to see a show and have

      dinner at the Shard restaurant. We spent the day before the

      show walking around London and meetin up with daughter &

      her partner for dinner. The next morning I felt so ill I just

      couldn't make the show or the Shard. They went to the show

      while I slept in bed at the hotel, disastrous! I've learned from

      that though, just because I was feeling a bit better didn't give me license to go gung ho. I would appreciate details of your

      get better plan.

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