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PMR Flare

Posted , 5 users are following.

linda82701_USA
linda82701_USA

Hello, all! I think I have been having a flare up of pmr symptoms for a while. My doc increased my press from 13 mg to 20 mg. said to stay at that dose for 3 days then drop to 17.5 mg and stay there for 3 days and then drop to 15 mg. I think dropping 2.5 mg at a time is too much for me. Also, is staying at each dose for 3 days long enough? I have a really hard time with the side effects of prednisone and am very sensitive to changes. Was reluctant to increase back to 20 but my pain and stiffness that returned told me I was overdue to give it a shot. Took my first 20 mg dose at 6:30 AM and by 9:30 AM felt remarkably better. This afternoon my stiffness and pain is a little worse than this

morning and am feeling pooped. Is this normal after my first dose back to 20? Would appreciate any insight! Thank you all. This disease keeps me confused as to how I am progressing. Diagnosed for 7 months. Thanks again! Linda

2 likes, 10 replies

10 Replies

  • lodgerUK_NE
    lodgerUK_NE linda82701_USA

    Posted

    Linda

    Follow this link to the pinned section on this site and thread http://www.patient.co.uk/forums/discuss/pmr-gca-website-addresses-and-resources-35316

     Then follow the link to the North East website, you will find and email address on it.  Send an email and in Subject heading put  Reduction plans, two will be sent to you free of charge.  One is currently being trialled in a research project.  There were devised by patients for patients.

    7 months is no time at all and it sounds as though you have been reducing too fast and are getting into a yo yo situation which is not good.

    Golden rule, no more than 10% at time. Do the math and send for the plans.

    • linda82701_USA
      linda82701_USA lodgerUK_NE

      Posted

      Thank you, lodger! I will. Tried to go to the link when you recommended it to someone before. Was unsuccessful. Hopefully this time I will get it right! Linda
    • linda82701_USA
      linda82701_USA lodgerUK_NE

      Posted

      Lodger,

      Tried to get to the right site.  Thought i did.  Filled in the information asked for: Name, Address, Country, Phone#, and in the box wrote Please send me the reduction plans for Prednisone.  Am diagnosed with PMR.  Tried to send it but it came back with this statement in RED :  Wrong phone number.  It is my correct phone number...tried to do it twice more.  Same thing happedned each time. Could it be because my phone number is from the USA?  But then so is my address.  Please help!  Linda

    • constance.de
      constance.de linda82701_USA

      Posted

      I've had this trouble with phone numbers and post codes when filling in British forms.  I live in Germany.  So?????
    • Anhaga
      Anhaga lodgerUK_NE

      Posted

      I live in Canada and also cannot get my information accepted by forms.
    • lodgerUK_NE
      lodgerUK_NE Anhaga

      Posted

      When you problems on the website just go to the Contact Us (on the blue line section) fill in the enquiry form and we will then get an email message and be able to sort it out one way ot t'other.
    • linda82701_USA
      linda82701_USA constance.de

      Posted

      Thanks for your information, Constance.  Finally made it through.  Now I cant remember how to start a new discussion!! LOL
  • pauline36422
    pauline36422 linda82701_USA

    Posted

    i have just done it lin  was ok.  but it looks like you are in  usa.   did you fill the  country code  in ok   i also think you are reduceing    too fast
    • linda82701_USA
      linda82701_USA pauline36422

      Posted

      I think I am reducing too fast too!  This time I will be very careful!  Thanks!!  Linda
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