Sea buckthorn oil for Sjogren's?
Posted , 6 users are following.
Anybody tried it? I've just started. I'd been reading up on it on-line for some time. It's supposed to be the bee's knees for the whole sicca syndrome, and dry eyes in particular. As I was due to spend a few days in London last week, I debated getting some, but decided it was too expensive.
Then fate took a hand. As I haven't had dry eyes for months now, I didn't take my eye drops with me. That's the trouble with remissions - you forget you've got the wretched condition and get cocky! First night in the place where I stay it was a bit stuffy, so I turned on the air-conditioning for half an hour. One of those individual ones that blows air out fiercely however low you set it. I sat up in bed, facing it, watching the TV for just half an hour before going to sleep, but that was enough. I managed to get replacement eye drops the next morning, but now I'm in big trouble. Decided to invest in the sea buckthorn oil anyway, and have now been taking it for a week.
They say you're supposed to take four capsules a day for the first two weeks then cut down to two, but I'm being careful. Took one a day the first week, will start on two tomorrow and build up to four by the end of the month. I once had a terrifying experience on a low starter dose of Siberian gingseng. Just because something is "natural" doesn't mean it won't harm you!
Sea buckthorn is also said to be good for RA. The main ingredient is Omega 7, btw, but it also has Omega 3, 6 and 9 - though a different type of Omega 3 than fish oil. I'll be interested to see how that works out. I'm actually having an RA flare-up at the moment, but it seems to have peaked since I started my usual homeopathic treatment a few weeks ago. As I'm taking the oil alongside the homeopathic remedies, that will muddy the waters, of course. But I'll stay on the homeopathy for six months because it always works.
I hear you have to wait three months for Omega 7 to kick in, so I may be in for the long haul with the dry eyes. My right eye is already starting to bleed from a crack at the outer corner. We're having high winds here at the moment, which isn't helping things, particularly as my hips and knees have now improved enough to stand a 45-minute walk most days. I finally caved in today, and put on my wrap-around industrial goggles (provided by an optician in the UK). But I feel a right berk wearing them when walking around city streets - especially as it's not considered rude to stare in this country!
1 like, 14 replies
jean34329 lily65668
Posted
You wrote my right eye is already starting to bleed from a crack at the outer corner.
Are you referring to the eye itself or the eye socket?[/b]
I am concerned to learn from your posting thaat you have a crack in the corner of your right eye that is starting to bleed.
Have you got access to an ophthalmologist or eye hospital?
I think that you should treat this seriously and get your eye examined by an expert.
You mention the high winds. Where are you based?
Do you have immediate access to an optician and ophthalmologist or an eye hospital. If not you could perhaps ring Moorfields eye hospital for the nearest one to you or advice as they have an inquiry line.
I would be interested in the homeopathc treatment you are following for the OA especially when you have a flare up. I would advise googling thyroid eye disease as well.
Jean
lily65668 jean34329
Posted
I have a mildly under-active thyroid, also par for the course in Sjogren's, for which I take thyroxine, and my ophthalmologist knows all about this. I'm afraid it's just a case of waiting a few weeks till the crack heals up. And not touching my eyes, of course - though that's very tempting as both of them feel as if they're covered with a sticky film. I've been here many times before, like lots of other people on this site, I suspect. I've been a bit spoilt the past six years, as I've been more or less in remission all that time, but I suppose it was inevitable it would come and get me again soon enough! But I can't complain. Compared to most people on here, I've had a really easy ride with Sjogren's.
In any case, this will be a good test of whether sea buckthorn oil really works or not. It's a bit on the expensive side, but I'm prepared to be the site's guinea-pig. It's also supposed to make your skin young and beautiful again but I fear mine is beyond hope!
I'll send you the list of homeopathic remedies I take for rheumatoid arthritis by private message. The last time I tried posting it on here I got modded! However, they won't necessarily be right for you. They were originally prescribed 35 years ago by a fantastic homeopathic rheumatologist who practised dowsing with a pendulum, so they were geared to me as an individual. Unfortunately, he retired years ago.
jean34329 lily65668
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Jean
jean34329 lily65668
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lily65668 jean34329
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jean34329 lily65668
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Thanks for the info esp about Vitamin A.
Jean
pam_87693 jean34329
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pam_87693 lily65668
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lily65668 pam_87693
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jean34329 lily65668
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I too had a problem with sunlight.
I even had to wear sunglasses indoors.
Jean
shira75032 lily65668
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Just got mine today at long last.
lily65668 shira75032
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I started taking the probiotic four weeks ago - and stopped taking it two weeks later after having a violent reaction, both physical and mental, as documented in my other post. I think this was almost certainly down to candida die-off in response to the probiotic. In addition, my friend with dementia - who I'd been taking care of for four years - suddenly fell ill on the day I started taking the probiotic and died two weeks later (which was a blessing for her). I spent the last week of her life alternating night shifts with her niece at her bedside, all of which corresponded with the exact period of taking the probiotic. Anyway, the end result was that the joint and muscle pains came back with a vengeance - worst flare-up ever in that department - although I was still taking the sea buckthorn. My entire digestive system also got comprehensively messed up, but I know that was the probiotic. I stopped taking the probiotic powder two weeks ago and since then the joint pains have eased off to where they were before starting sea buckthorn. The mental symptoms have cleared too, and my digestion is slowly getting back to normal.
So... the jury's still out on sea buckthorn oil. (But not on the probiotic powder!) To be fair, the stress of those two weeks probably played its part too, but I must say it'll be a long time before I'm tempted to try a powerful probiotic again. My gut feeling is that the sea buckthorn oil is in fact doing its work, particularly as I seem to be recovering very quickly from the nasty flare-up apparently caused by the probiotic. However, I think I'm going to have to wait another month before I can really judge.
shira75032 lily65668
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I'm also very sensitive to probiotics and am unable to take a strong one that I've recently purchased.
lily65668 shira75032
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My sympathies if you've also been having problems with a probiotic. I know just how terrible it can make you feel. These things should carry a health warning!