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Predisolone

Posted , 16 users are following.

junieju
junieju

Hi

My husband is reducing predisolone, he is very tired and has no interest in most things, he has no energy at all, doctor is doing more tests, what can I do to help him .

Thanks

Junie

0 likes, 96 replies

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  • Nefret
    Nefret junieju

    Posted

    Was he diagnosed with both Polymyalgia Rheumatica and GCA?  How long has he been on steroids and at what dose?

    Fatigue is a common side effect of steroids and can also be a symptom of PMR.  There isn't a magic pill for it unfortunately, but it can be managed.

    • junieju
      junieju Nefret

      Posted

      He is down to 1mg every other day,

      He has been on them for about 9 months

    • Silver49
      Silver49 junieju

      Posted

      That seems a quick reduction. I would wonder about the speed and whether GP instigated. I am just at 9.5 after about 8 months and still have some pain (manageable) and some fatigue but nothing like before steroids. Sounds to me like your husband is the way I was before diagnosis. Does he have pain? Someone with more experience and knowledge will be along to advise.
    • junieju
      junieju Silver49

      Posted

      He has no pain, just so tired, he just has no energy at all
    • Silver49
      Silver49 junieju

      Posted

      The tiredness will be awful and lack of energy is so difficult to manage. Are you reasonably fit? I realise you will have to deal with so much more and you need to take care of yourself as well as your husband.....not easy.
    • junieju
      junieju Silver49

      Posted

      It is not easy, I have health issues, we are reasonably fit, but he just has no get up and go, I think it's got up and gone.

      Junie

    • Silver49
      Silver49 junieju

      Posted

      It won't be easy if you also have health issues and it's often the case. Your description of having no get up and go along with pain etc. describes how I was before diagnosis. Was your husband like that prior to diagnosis? I know you said he has no pain at present.
    • junieju
      junieju Silver49

      Posted

      Before taking predisolone, he was always on the go, he had lots of energy, he now has none
    • Silver49
      Silver49 junieju

      Posted

      I had lots of energy and was always on the go prior to PMR. What prompted the diagnosis? Did he have classic pain symptoms or what led to his diagnosis?

       

    • junieju
      junieju Silver49

      Posted

      Last March he had pain in legs and upper arms, doc started him on 15mg

    • Silver49
      Silver49 junieju

      Posted

      It does sound like adrenal glands need checking. I hope this will be done with the tests the GP is pursuing. 
    • junieju
      junieju Silver49

      Posted

      Will be talking to his GP

      Thanks so much

      Junie

    • Silver49
      Silver49 junieju

      Posted

      I hope you have some resolution soon. Please let us know how your husband gets on. Best wishes.
    • junieju
      junieju Silver49

      Posted

      I will let you all know

      you are all a great support

      Thank you

      Junie

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