Scoliosis and constant pain
Posted , 4 users are following.
When I was 16 I was diagnosed with scoliosis. I had a 17 degree curve to the right. I know this is mild but I am now 22 and experiencing more and more pain.
I can't walk for more than 15-20 mins without my back burning with pain, I can't carry a bag or my shoulders really hurt, I can't stand up for too long... I could go on.
My scoliosis doesn't look sever but it certainly feels it.
I spoke to my doctor a few weeks and and was referred for physio therapy. Both told me that scoliosis categorically doesn't get worse once you're a certain age but I've ready many things about progression in adults.
Should I keep pestering until I'm given another X-ray or am I wrong? should I just take the physio and see what happens.?
I'm concerned that my curve may have progressed but nobody cares to check.
1 like, 9 replies
Jay91157 Olivia295
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Olivia295 Jay91157
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Olivia295
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It's super annoying how it's considered mild so nobody can really do much but it causes me such pain. I'm really worried that it could have progressed but nobody will check because according to my GP 'it just doesn't happen'.
lynsey1976 Olivia295
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I go in for my operation in August.
Keep pestering them and good luck x
Olivia295 lynsey1976
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Good luck with your op!
JENNY1968 Olivia295
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awful. My pain is unbearable and I'm having difficulty in breathing. I'm on a waiting list with Orthopaedic in hospital for nearly 2 years and no idea of when I'm going to be seen, I'm suicidal at this stage, so much for the politicians going on about waiting lists can anyone tell me that 87 weeks is an acceptable waiting list and even though I'm waiting longer than this I've still no help.
Scoliosis kyphosis deteriorates with age despite what some doctors try to tell us.
Olivia295 JENNY1968
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I just can't understand why doctors tell us that it never progresses, maybe mine hasn't but the pain is getting worse so I thought they'd at least want to re-X-ray to check. Besides it not like we don't google things, there's loads of stuff online that proves that I can progress with age but they still maintain that it doesn't!
Jay91157 JENNY1968
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Are you in the Uk? If so where? 87 weeks on a waiting list seems unreal. Is this for Surgery?
I saw my consultant initially, privately for a trapped nerve in neck. By chance he was the top spinal surgeon who specialised in Scoliosis in my area, He saw my curve and decided to see me as one of his NHS patients, as the scoliosis presented in my teens so would not be covered on my private policy. He did the paper work and I saw him in the March, had several other appointments and last Feb 28th he operated,T2- L2. About a year in all.
Have you checked with your hospital trust to see what they have as time scales. Most have 6months and If they go over you could effectively ask for choose and book and been seen privatley. You at least may get a consultation this way. If the trust do not advice on their website try PALS. Then their is always the CCG again should be found on the hospital website.
Sometimes patients need to push things forward. I know I had to with some of my appointments.
I feel for you as this seems a crazy wait particulalry when you are in pain.
JENNY1968 Jay91157
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