Large fibroid, still want kids. Need advice
Posted , 10 users are following.
Hello. I have a large Submucosal uterine fibroid in my posterial wall the size of a cantaloupe. I am 35 years of age and have not had any children, but am desperate to get pregnant. I am awaiting consultation with a doctor for a myomectomy.
I am curious to know if any of you have had a similar experience and were able to conceive afterward. I live in the United States and keep being told that for the location and size, a hysterectomy is my only option, but I refuse to believe it. I have tried hormone therapy and acupuncture therapy but both have not worked. In fact my fibroid has grown since starting alternative treatments.
Thank you.
0 likes, 12 replies
farida2 julia122480
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julia122480 farida2
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f91864 julia122480
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k.chaunte julia122480
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She said there are precautions that can be taken to minimize scar tissue and we'll just have to be very vigilant in monitoring regrowth afterward, but this was my best option, all things considered.
All of the women in my immediate family (mother, grandmother and 2 aunts) have had to have full hysterectomies in their late 20's/early 30's, but they already had multiple children by that point, so it was no big deal. I'm the first girl to be this old with no children, so my doctor has been great about helping do whatever to keep things in tact so that I can have children.
I don't know anyone personally who's had a myomectomy and conceived aftwrward, so it took me a LOOOONG time to call my doctor back to give her the okay for the procedure. Honestly, the thing that eased my mind was coming across this and a couple other forums. There were people who had myomectomies recently as well as years ago who had conceived several times over.
I understand the risks, talk to my doctor often about any questions or concerns that come up in the mean time and I'm ready to do this. I'm confident that this is my best option and will allow me to conceive successfully afterward.
Wishing you all the best!!!
toni44td julia122480
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I have just had my Cantaloupe melon removed that was impacted on my pelvis and completely distorting my bladder, to the point that I was in retention. The surgeon said he was so glad he got it removed when he did.
I was was told it was the size of an orange at the beginning. so wasn't that concerned, but these fibroids just continue to grow. I wish I'd had it removed 2.5 years ago when it wasn't so big.
I do feel for you as you wish to get pregnant, so hopefully a myomectomy may be the answer for you.
I wish you all the best Julia.
Toni (UK)
hev36200 julia122480
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At her follow up the surgeon told us that she is 100% able to have kids (only thing is she will need a c section to deliver) small price to pay.
The op involved a large incision in bikini line, incision in uterine wall and scooped fibroid out before closing. When he checked at follow up, he only knew when incision was as he had performed op (it had healed so well.
I wish you well and hope they try a myo and you can go on to have your babies. Xx
nyawira julia122480
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I had fibroids .9 big ones on the uterine wall.
One in the uterus and small others.
Doctors had given me a thinking time to remove my uterus as according to them i couldnt get pregnant at all,at 34.
I decided to get a second opinion and i was reffered to another gyna and i was put zoladex and esmya for 6 months.
Last year July i had a myectomy and continued with Esmya till october.the fibroid inside uterus shrunk completely and the small ones are still inside but calcified(dead)
And a miracle happened immediately, am counting weeks to deliver my boy.
So i would tell you not to give up,get opinions from different doctors and give it a try.
35 is still young and can still have children
heather34376 julia122480
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nyawira heather34376
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But i little disagree with trying being pregnant still with fibroids.
I ignored my fibroids as i followed some advice that it wil be okey.
Well with all trial ingot pregnant but it was hell as fibroids tend to grow and compete with the baby,and eventually start dying which is soooo painful.
It was either my life or the baby's.17 weeks of hell until the baby died and left me with a damaged body and also mentally.
These days there are a variety of treatments and alot of fibroids studies.
So,my 2 cents is one needs a doctors advice,different opinions and settle for one.
marsha_56554 julia122480
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Im 36 and I have two submucosal fibroids one of them is the same size as yours not sure of the exact location within the uterus, my Gyne has me on Esmya for three months in the hope of removing the two shrunken fibroids via a Hysteroscopic myomectomy in September this year, this method still allows for natural childbirth as no incision is made in the abdomen.
I would definitely get a second opinion as there are a lot of myths out there about the best treatment.
I'm based in the UK so services differ from one NHS trust to another but I'm shocked that you have only been offered a hysterectomy at 35 there are a number of surgery types and medication that don't affect fertility.
Research the best gyne's in your area and one who specialises in fibroids.
Good luck
Marsha
Travellife julia122480
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heather34376 julia122480
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