How long will it last? its been nearly 7 months
Posted , 3 users are following.
HI all, I have just been diagnosed with HSP and have had it for 7 months straight (spots, pain, nausea etc). I was wondering how you all deal with it? from what I have heard, it typically only lasts a few weeks to month or so. Obviously 7 months is a lot longer. I'm worried about all the kidney problems I keep hearing regarding HSP. so far I have had 2 ultrasounds, and 2 ct scans but all shows normal, but the pain and nausea are really getting to me. I dont see my nephorologist for another 2 months- i only found out I for sure had HSP becuase I called for my biopsy results and was told both my doctor and specialist agreed it was HSP. Anyways, i guess i'm just looking for answers and want to know how everyone deals with it...
0 likes, 3 replies
Betsy123
Posted
All I can discuss being that I haven't experienced a huge amount of abdominal pain or nausea but have had really achey joints particularly in my ankles (made it so difficult to walk) is that the steroids really got rid of all the pain for me! This however didn't get rid of the awful rash I had on my legs until I was put on dapsone.
What have the doctor said to you in regards to medication? All the best x
Cantara
Posted
I am concerned though about the arthritis. I already have bad joints in my legs and hip dyspepsia so i'm use to that sort of pain, but generally is not my ankles, knees, hips and hands at the same time (only since july have I been getting the wrist and finger pain. that and just the nausea feeling/not being hungry (i'm generally a pig)and stomach pain is just getting to me. I'm normally very active but i find these symptoms are just getting in the way of my life. i ride/train horses, work part time and go to university so i lead a very busy life.
blueflamingo
Posted
I've had HSP for over three years now and have never got the symptoms under control. I'm just about to try Dapsone.
My arms and legs are so covered in the rash there is almost no normal skin! I manage my stomach pain with ibuprofen, which also helps with the joint pain. I find the joint pain is very changeable. I went several months with constant pain in both hip joints and both knees. And then it disappeared just like that. My ankle pain comes and goes daily and I get swelling in my fingers and palms.
Steroids can help with the swelling/joint pain but I had awful side effects.
From what I have read and personally experienced I don't think the HSP does permanent damage to joints. The symtoms are like arthritis but it doesn't cause damage and once the HSP symptoms are under control the joints go back to normal.