Kidney Cancer post surgery pain

I just joined group so this is my first blog.

I had a radical open surgery nephrectomy last Sept (2013) As you prior to a show of blood I had no symptoms, not even pain.

i had a long op and a blood trnsfusion and a 100mm tumor and kidney (left side removed along with adrenal gland an,I think,lymph node.

I developed an infection post op and now have an incisional hernia.

I get all sorts of weird pains and twinges from time to time but not all the time

I spoke to my  doctor and it does seem like nerve damage as they really have to cut through a large area of muscle etc and it damages the nerves. 

I only take parcetomol if pain gets annoying from time to time. I think we just have to put up with it though it does get you down from time to time. I also get tired suddenly during the day but this is normal living with one kidney. On a positive note at least we are here to experience the niggles (better than the alternative methinks). I wish you well and hope the above is of help. Regards  Steve

Hope you are still clear and the pain you are suffering post op. is starting to subside or is at least controlled.

My kidney and cancer was removed in 2008 I won't fill the page but I had no symptoms whatsoever and was initially misdiagnosed by the local consultant who said given the size there was no way I would look so well if it were cancer! The tumor was 19cm across when removed by the 2nd consultant and left a Mercedes shaped scar across my abdominal area. I too get pains similar to a stitch but in the lower area and I'm told is due to muscle/nerve damage. Luckily not constant. I went on a trial after surgery, but had to leave after 4 months due to side effects. I attended for CT scans every three months for first 4 years then six monthly. On 5th anniversary I was told I had secondary spread in the lungs. That was May 2012, I'm now on treatment but living a relatively normal life in that although I have retired early I couldn't sustain a job even part time I able to pace myself and enjoy life. However most people would have no idea I'm ill, I look well. Treatment is going well and I'm told when these tablets stop working there are others. No cure yet but I may still be here to trial one.

I'm not trying to frighten you but to demonstrate that you MUST keep up the regular checks. A pain but they're worth it. If I'd stopped the checks it would have only been found when I got symptoms. My only symptoms are side effects of the treatment at present and as that has halved the tumor sizes and are now holding them I feel very lucky. I've seen my daughter graduate uni and My first grandchild is due in 8 weeks. I can't imagine if it had not been found early.

Stick with it & Take care Jenny

I had my left kidney removed 12 months ago but was right as rain within 6-8 weeks. So much so that I probably got complacent and did too much. Being a keen cyclist I went back on my road bike and boy, did phantom kidney not like that!! I did 13 miles and it took 3 months for the aching to stop.

Fast forward six months and had got up to 20 miles on my Hybrid bike (sit up and beg sitting rather then the bent over road bike) but I blew an inner tube and went back to the road bike and did 20 miles.

Haven't been able to do anything since (2 months ago) and my whole left side hurts when turning over in bed, getting off the sofa etc. Saw my specialist as thought I might have given myself an incisional hernia and he dismissed this saying it's probably nerve damage and I should get the bike shop to look at the set up on my road bike !!!

Is it common for recovery to take so long??

Cheers

Nick

I hope all of you are doing fine. I would like to ask if anyone has the same issue I have and what I should do. I had left kidney cancer in 2012 and partially removed it together with an ovarian csyst. For 2 years, I had xray on lungs,sonar every 3 months and ct twice. It was ok, now I do sonar only though i should do xrays as well every 9 months. For more than 6 months I suffer from presistent left pain, I went to abodminal doctor after having sonar which was ok,he suggested that I may have cold or muscle pain or I have to check my colon which was ok then and prescribed pain killers which did nothing. Now besides this pain I think my colon is not ok and evey food i eat turns to load after eating it by 1 hour. Though i didn,'t change ny eating habits i have gained 10 kgms within few months. I'm afraid to undergo ct scan because i heard it may cause kidney failure when repeated. Have anyone the same issue?

I was diagnosed in Nov of 2015 and had surger in late Dec.  Partial nephrectomy on right side.  I have discomfort on my right side, mostly when I do moderately strenuous work or when I eat too much (strange combination).  It's the same type of discomfort.  Much like a soreness.  It's right below the abdomen.  Will go for my next scan in August. I've heard of nerve damage before.  That's possible.  Could be something else.  Guess I'll find out at my next dr's appointment. 

I have the same problem, I had my left kidney removed on 6/1/2016. After a 4 days in ICU I started getting real sharp pains on my leg. I scream because it felt like 1,000 of stabbing on leg..they told at the hospital it was nothing. I was in the hospital for 7 weeks and I kept having those pains and all I heard was, that I'm here to recover from surgery. I would get mad at the nurses and doctors. Nobody listens to me

Then when I got out they send me to pain management. Which they were no help, they try to day I had to go back to my cancer doctor. He read the report and I had to go get tested again for cancer, this time in my spine and blood..after 4 months of them testing me. Their was no cancer! Now they don't know what it is..they said it's nerves. Plus if I didn't have it fix, that I might not walk again..still waiting to see what it is. Mean while i'm using a walker because it'd hard to walk more then 1-2 house distance. I still in pain, nothing is helping. I feel like nobody cares.

Thank you

Hi all

I'm 59 and had a radical nephrectomy 10 mo. ago in February 2016 after being diagnosed with RCC. Initial recovery was good and 6 mo. lung scan was clean. However, about 2 mo. after surgery, I started getting lower back pain and stiffness on both sides, along with occasional "phantom kidney" area twinge. I worked with a Pilates instructor to strengthen core, but back stiffness persists. Best advice: regular walking and not sitting for long periods. The walking seems to relax the muscles. I have no idea why this developed (never had back problems before). Hoping it eventually goes away.