endometriosis after full hysto...elleste hrt?
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Hi There! Had july 2016 endometrial ablation due to fibroid left in huge pain. october abdominal full hysterectomy removing everything. very hard recovery cos was in terrible pain till the hysto. in the surgery had to remove appendix as well plus adenomyosis and abdominal endometriosis. surgeon didnt touch endo. now 9 weeks after op recovering was very slowly just got out of bed...started 2 weeks ago elleste 0.1 mg estrogeon hormon very good for my bones aches,,less crying,,sleep better,, much less sweating only little now. but side pain is back and dont know cos the ellester hrt? or just overdoing still myself with little house work? still not doing a lot. The surgeon said after surgery abdominal wall endo still there but dont worry about it sorted with a full hysterectomy. gp still thinks i am only slowly recovering cos lots of illnes was same time nothing worry about endo. anybody with this kind of experience? thanks
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aitarg35939 csilla92709
Posted
Hi Csilla
I'm a little non-plused by your doctors' decision to leave the endo on the assumption that it won't do anything more, but then their medical degrees sure trump mine.
If you aren't cleared for housework, stop doing it immediately. If you're not cleared for sex, don't have it - and no quibbling over what's "really" sex & what's not. Ditto for walking, driving, exercising & anything else you've been told not to do. You've had major surgery & had organs removed. It takes time to recover & time for your innards both to heal & adjust. The older you are, the longer all this takes. Also the kind of surgery/incision factors into length of recovery. You can make everything take much much longer by doing things too early.
I had some lingering pain following my total hysterectomy. The site that hurt the worst - left ovary - hurt for some time intermittently. I had some other occasional pain, plus one new pain. Eventually they all stopped hurting. Now I can't help wondering if those pains were of the lost limb variety. Also nowadays we know a bit more about how pain memory gets trapped in the nervous system and in the brain. If you were me & still had pain at 6 months out, & docs said I was fine & pain should end, I would try acupuncture. If there's a school near you some times you can get free treatments by the teacher if you're the demo model. (Needles are about the size of a human hair).
If you're interested, i'm sure there's a forum on the topic.
HRT never caused me any pain but it wasn't the same kind or strength as yours so I would ask the docs that question..
aitarg35939
Posted
csilla92709 aitarg35939
Posted
Thank You for your answers. Became very very sick from elleste o,1mg HRT ended up in horrible pain (strong period ) stopped and better now. back to normal pains. Will listen to you and stay patient to myself. not easy cos really want to do things and very fed up been house from july. My pain also left side where my only one ovary been removed. My GP sending me to another hospital to see endometriosis specialist hope wont be to long.
aitarg35939 csilla92709
Posted
An endo specialist sounds great! I, too, hope you don't have to wait long.
It's really hard being stuck inside a long time, isn't it? Lung problems have kept me inside most of the time since August. As hard as it is for me, it's much harder on my dog. Oh well ,,,
Check out acupuncture. It.only sounds scary.
csilla92709 aitarg35939
Posted
Hi! Sorry to hear You"ve got lung problems. Hope u ok. GP yesterday again new hormone didnt try yet scared. cos stopped elleste solo all the hormons things back. crying,,, less sleep,,,bones hurting.
at least able in the morning taking out my yorkie for outside not much walk just little bit he likes staying front of the house. aug-- dec. couldnt take him out was hard on him. like u saying. was very ill till hysto 6000 mg painkillers opiat as well daily and they didnt do the emergency surgery cos has to be planned. this was torture i think. 2 my friend went to Hungary and they got emergency surgery in few days by professor and they fine very fast. only fibroids removing and money for the professor but still better then sitting and waiting in UK. My GP yesterday said stopp worrying endo will dying of eventually. hope so she is right and You right as well it takes very long time recover from this tah surgery for me. try to do from youtube healing hypnosis. this is a big punisment for me cos 27 years never been without work am little bit workaholic and very active person was. 2 little running in forest with my dog and in work also on feet all day. so in bed and in house this long big punisment for me or just a good lesson for the future!
Will check out acupuncture doesnt scary to me. needle after 5 times in hospital 3 surgery lots of investigations not scared anymore.
aitarg35939 csilla92709
Posted
Csilla-
Thank you. I felt somewhat normal yesterday for the first time in weeks so I'm hopeful that my lungs are better.
You've never mentioned your age and that can be a big determinant about HRT. I was 27 when I had a total hysterectomy. Despite taking premarin, my skin thinned almost overnight. Now at 62 my skin is that of an 80 years old woman - and I only went off the hormones finally 8 years ago after tapering down for about 6 years. If you have naturally darker skin than my redheaded freckles, it shouldn't be as dramatic.
Hormones also factor into brain function and the lack of them can affect our personalities. You may still decide to do without, but consider these things & become as informed as you can stand from reputable sites.