Emotional stress of LP

Hi

I understand exactly how you feel.  I too have trouble dealing with the physical pain which in turn affects your mental health.  The two are closely intertwinned.  I have been put on anti depressants two weeks ago.  Perhaps you could consider this?  This disease is awful!!!!  Take care of yourself.  I know how hard it is to deal with this!  I am going through the same. Best wishes. Jan x

No your not! It can be so horrible. I have it in my mouth so just drinking water at times can be a challenge. However, I've just started a steroid treatment of prednisone and all my sores have healed up and my mouth and is feeling quite good for the first time in a long time. I have 4 more weeks of this treatment and I'm praying it'll send it in to remission. Best of luck to you, I feel your pain and wish I could offer you some relief

You are definitely NOT the only one who has melt-downs, mini or otherwise. Me and many others are sometimes driven to distraction by the terrible itching that this causes. The doctors say not to scratch but it's almost impossible and then the skin bleeds and the pain is almost a relief. I'm lucky in that I don't have LP pain as such, it's "once removed" and I suppose, self-inflicted but very little eases the itching at all and it really does cause mental melt-downs. Unfortunately this doesn't really help you but be assured that you are not alone with your meltdowns!

No you're not alone. I have had deprssion because of it. And it is overwhelming.

oh bless your heart i hope your ok, trust me i`m sure i can speak for all of us , anyone with this horrible cronic condition has really down days, it surely can be expected considering what we have to put up with ! most days just eating is like chewing on glass and don`t get me started on the other end, some days i have a job to sit comfortably .what i do if it`s any help is when you feel down let it out ,don`t be affraid to have a giant cry you`ve good reason to. If you`ve a good friend have a moan to them too and hopefully it`ll be enough to get you through another day.This is a nasty thing to stomach on your own so remember we`re going through it with you and we`re all here to chat if you need it x

I can really commiserate with that sentiment. I've had autoimmune illness for two years and nothing got me down until I got lichen planus. I was able to cope with intestinal hyperpermeability, constant food reactions, swollen eyes, brain fog, Hashimoto's thyroidism, and condition after condition piling up as my immune system turned on me, but this - it was the straw that broke the camel's back. It's so painful and it feels so vulnerable to have intense pain in such a delicate area. My personality has changed because it's internal and friends and family (with exception of husband) just cannot understand the change in me. I'm an upbeat person, but this has got me up against a wall. It's all-consuming. I finally broke down after two years of coping. I think I scared my husband. I think I'm scaring myself. All I want to do is go basejumping and forget everything because suddenly all the things I was ever afraid of in life are nothing compared to this. It's the worst fear I didn't know I had - coming to reality. Worst part is that I cannot take antibiotics, NSAIDS, or other painkillers due to my conditions. I'm not sure about steroids, but I'm certainly concerned that treatment is going to worsen my other situations.