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Endometriosis?

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shoo212
shoo212

Hi everyone! I'm new here. I had a surgery 3 years ago to remove uterine fibroids and one Chocolate cyst on my right ovary. My both side follipan tubes were blocked but no procedure was done about it. I was pain free for a couple of years. Since the end of 2014 I started having pain before my period then it lasts at least 10 days even after my period flow stopped. Most of time the pain sets on my right lower quadrant, but it could move to the left and middle below the belly button. The pain hurts my waist/lower back and radiates to my right leg. I also get very bloating when the pain is on. My blood test/urine test/Ultrasound/CT/Colonoscopy all came out clear. They found a 3mm calcification in anterior abdominal wall on CT scan but was not sure how it related to my pain. They gave me diagnosis of IBS. One doctor told me I might have pelvic adhesion from previous surgery but he can do nothing about it. The pain goes on when my period is due then goes off about 10 days after period ends. It has been a cyclic pain for over a year now. I’m so exhausted taking pain medication in order not to miss my work. I feel I might have endometriosis but this only can be tested by Laparoscopy performed by Endo specialist. I’m living in NYC area. I don’t know what to do at this step. I have been seeing so many doctors but the answer always was “NOTHING!” I appreciate any answers here!!

0 likes, 5 replies

5 Replies

  • aitarg35939
    aitarg35939 shoo212

    Posted

    In the US, any ob-gyn can do the laparoscopy, tho if you're in NYC there should be a number of docs who perhaps treat more endo patients. I choose only to see guy's, but that's because I've spent enough of my life waiting for other people's babies to be born when I can have none ,,, the chairs and reading material don't make up for the 5 hr appt delays.

    Back in my day a chocolate cyst was called a Brown spot. If you had that you had endometriosis, so I don't understand why you weren't diagnosed.

    When in doubt in this country, find the best internist (Dr of internal medicine) or osteopath, or gastroenterologist. These are the docs who are best at figuring things out. IBS is the current American trashcan diagnosis, by which I mean that lazy or ignorant docs push everything they don't understand into that category and shove the patient out the door. This diagnosis was there in my day and I still tell docs not to give me that BS, look further. I've been proven right every time. (I'm not saying there isn't IBS because there surely is and it can't be at all pleasant.)

    So try to find another doctor but do a lot of forum searching first to see what others say - I even rave or rant a out docs on Yelp.

    Good luck and I hope the pain stops soon.

    • shoo212
      shoo212 aitarg35939

      Posted

      Thank you for reading my message and giving me your opinion.

      I can't agree with you more smile. I have scheduled an appointment with the doctore who gave me surgury before to see if I need a laparocopy to see what's going on inside. Hope she could find somthing instead of nothing but pain/bowel symptoms. Did you finally get cured and had kid?

    • aitarg35939
      aitarg35939 shoo212

      Posted

      Hi Shoo

      I never really wanted kids, so after years of nightmarish pain and a laparoscopy, at 27 I had a total hysterectomy. This was back in the early '80s. By the time of my surgery I'm certain that I was infertile

      It was the right decision for me, especially given the few treatments available in the US then. I assume that you want a child or 2, so I am very glad that you have better treatment options than I had.

      I'll be keeping you in my prayers for a quick and good outcome.

      Aitarg

  • brandilafitte
    brandilafitte shoo212

    Posted

    When my endometriosis pain was at it's worst, mine also started in my abdomen, ran down my legs and to my chest. During my first surgery the endo also closed my Fallopian tubes. I saw a fertility specialist for that problem, but the endo was everywhere and he wasn't able to open them much at all. I was put on birth control for the pain, no help. I tried Lupron injections with no help. I finally had a hysterectomy and so far no more pain.

    So from reading your story I think you do have endometriosis. This disease isn't something to play with and should be treated as best as it can. Sadly, there is no cure for endometriosis but some treatment options may help.

    • shoo212
      shoo212 brandilafitte

      Posted

      Hi Brandilafitte -

      I have scheduled a dignostics laparoscopy next month. Can I ask how long you have been pain free after the hysterectomy? Did you also remove your ovaries? I don't have plan for kids since i'm over 40 already. So if it could help about the pain I would think about removing the uterine.

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