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EVENT PLANNED IN BIRMINGHAM

Posted , 3 users are following.

julia79095
julia79095

I would just like to raise awareness of a lunchtime event taking place on r 31 October for members of the two Facebook support groups for Hemifacial Spasm (International Support Group & Worldwide Support Group) This event promises to be an excellent opportunity to meet up with fellow sufferers and people who have had successful MVD surgery. If you are interested in attending please check out either of the facebook pages where you will find full information posted in the events under "Hallowe'en High Jinks".

0 likes, 8 replies

8 Replies

  • suzi57
    suzi57 julia79095

    Posted

    Hello Julia

    I'm not a facebook member but would love to go, i'm awaiting my op date which should be next month. Can you give me the details please?

    Many thanks

    Sue

    • julia79095
      julia79095 suzi57

      Posted

      Hi Sue! Thanks for your reply...we'd love you to join us if you can, and I've pm'd you the details. Where are you having your surgery? I really would recommend you having a look at either/both of the support groups on Facebook...They are both incredibly well subscribed and there is a wealth of experience there from some lovely people who are always ready with answers, advice and encouragement. It was really the support that I received from members of the groups in the run up to my surgery and during my recovery that prompted me to suggest arranging this event.
    • suzi57
      suzi57 julia79095

      Posted

      Thank you; I'm having the op at Bristol by Nik Patel. I have had support from Roseanne on this forum who supports a lot of sufferers & had her op done by him with great success. I managed to ask my doctor to write to him & succeeded to get an appointment.

      I will let you know ASAP re 31st. Just checking travel possibilities as coming from Devon

      Kind regards

      Sue

    • julia79095
      julia79095 suzi57

      Posted

      Brilliant! Look forward to hearing from you 😊
    • Roseann
      Roseann suzi57

      Posted

      Hope you can make it Sue; it will be fantastic to put the face to the name!  Cheers, Roseann (aka Angela) x
    • suzi57
      suzi57 Roseann

      Posted

      Yes I'll be there! Look forward to meeting you too. Sue x
  • Roseann
    Roseann julia79095

    Posted

    Thanks for posting this Julia; look forward to seeing you and hopefully lots of others in Birmingham, UK on 31st.  Cheers, Angela (Bond)
    • julia79095
      julia79095 Roseann

      Posted

      Thanks for the suggestion Angela! I'm really looking forward to it too!
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