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excruciating daily headache

Posted , 4 users are following.

violetb
violetb

I was diagnosed with CRPS last Novemeber after breaking all the bones in my foot.  The foot is getting better at a glacial rate, but more rescently I am experiencing debilitating headaches on a daily basis that respond to nothing.  I am at my wits end.  It feels like a combination migraine/tension headache accompanied with dizziness and nausea.

Anyone else experiencing these headaches?  Know of anything that helps?  I'm on gabapetin and elavil, but neither helps.  I literally can't do anything!  work, think, read, go on the computer, watch tv, exercise.  It's impossible to deal wiht this.  Open to suggestions!

Thanks,

Violet

1 like, 5 replies

5 Replies

  • english_lady_in
    english_lady_in violetb

    Posted

    Have you asked your doctor if you can come off the pills you are taking ?Look on the advice sheet enclosed with them ,maybe one of them or a combination of both is causing your headaches .
    • violetb
      violetb english_lady_in

      Posted

      I can't come off the pills, because they are the only thing keeping my foot functional.  We've tried lots of stuff and the gabapentin and elavil keep my foot from turning into a hot poker or curling up into a frozen nut.

      Ever since being diagnosed with CRPS, which originated in my foot, I have had really bad spasming all over my body:  hands, low back. neck, face...and the headaches are just another area, but they are by far the most painful.

      thanks for your reply.

  • sarah08272
    sarah08272 violetb

    Posted

    Hi there, i also have CRPs, left lower leg, diagnosed 2years ago. Shortly after the operation that caused the CRPS I woke unable to see properly and with excruciating headaches, mostly on the righthand side.  I have been under a local neurologist but recently he decided i should be referred to a specialist headache clinic, i am going to have to travel, but he referred me to Stoke. Apparently they are very good. It is quite a wait, appointment is in October, but i am hoping they may have some answers! All i can do is try to reassure you as I have had headaches since 2013 and i am still here! So reassuring that nothing too sinister is going on, although extremely debilatating on the very bad days. I sympathise because nothing does work. I am on oramorph for my CRPS pain and that helps to knock me out sometimes! I have had a brain scan which revealed nothing but does help to reassure you.

    i wish you all the best.

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