Posted , 3 users are following.
Hi all... I take 300 mgs 4x's a day at 8:00 AM, 2:00 PM and then 5:00 pm and again 7:00 PM. I am only taking it to avoid withdrawals during the day and the HORRIFIC body aches/leg twitching at night. I do not need it anymore otherwise.
Please help me know the best way to come off of this.
Thanks!
hisbride2b
0 likes, 4 replies
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wilma60 Hisbride2b
Posted
Holly1974 Hisbride2b
Posted
I have to agree, that coming off this is best done under drs supervision, preferably a senior dr like a consultant in a pain clinic. You dnon't want to be messing with this drug, you are on quite a hefty dose. As someone who has managed to come off gabapentin / pregabalin ( I have had them both ), there is not a magic way to come off this. I looked at this a bit like anything else you know your body is going to crave you to take, I gave myself a date that I would start. I had the correct doeage from my drs to start dropping it down, I did it weekly as I take a lot of other meds too, what I did find was that I personally was in more pain ( nerve pain ) for 2/3 days every time a dropped the dose, but I stuck to my guns and tried to distract myself ( meditation, reading, etc )....as it would have been easy to think ''oh, I'll have a week off'', but I had made up my mind that it had enough impact on my cognitive function and short term memory over a few years on it, and I was stopping it. I am nearly a year off it now, I still can get intolerable nerve pain and am taking nothing for it, however I look at it that it's not going to last forever, and eventually get through it.....see a dr before you start, you'll need to to get the right doses anyway to drop the dose down gradually
Hisbride2b Holly1974
Posted
Thank you!
Holly1974 Hisbride2b
Posted
There are too many drs ignorant to this drug, it makes me so mad, and I have a degree in pharmacology ! and have worked in the pharma industry in the past. I never suffered too bad from muscle twitching, so am afraid I cannot offer much advice there. The one thing I noticed was the inc. in pain every time I dropped the dose down. Just grinned and beared it for a couple of days, and swore will never go back on it. One dr told me that there was evidence that after a year or so that it's efficacy declined for treatment of nerve pain....receptor numbers change when many drugs are taken, thus altering the effect of the chemical at a receptor level. Too many drs sadly have a poor understanding of pharmacology, and I have found the lack of knowledge of GABA drugs to be shocking from a personal perspective. Just take it slow, you can always maintain that dose another week if you cannot face a further drop down, just don't give up, and if you feel v unwell seek advice from someone who knows about this medication. I took 1800mg of this for a long time ....split over 3 doses over the day, it went from wonder pill to my worst enemy over time !