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Gallbladder removed, now diagnosed with narrowing of the bile ducts in my liver.

Posted , 3 users are following.

Simitai
Simitai

I had my gallbladder out Nov 2014, operation didn't go smoothly as gallbladder was full to bursting with stones - despite being told in radiography there were only 3 stones. Wounds had to be extended to get it all out, and took a few hours.

Like most of you on here suffered a number of attacks of excruciating pain in my chest and back. To the point I've passed out (I have a high pain threshold due to long term kidney stone sufferer). On three occasions an ambulance was called.

Each A&E trip resulted in blood tests, chest X-ray - all saying nothing wrong.

Husband came with me to last hospital appointment after getting a referal - and doctor initially said 'think you are just going to have to live with the pain, it could be kidney stones you know'! Husband pushed back and said that just wasn't acceptable- as kidney stones had been blamed for what turned out to be gallstones for years.

Had ultrasound which showed debris filled fluid sack at site of gallbladder removal. Told they 'thought it would be fine'. Hubby requested to see someone else. Finally had an MRI scan which has shown severe narrowing of the bile ducts in my liver. All I've been told is its complex and therefore referring me to a specialist in Liverpool. The doctors screen showed my GGT levels at 67 (back in February), even though I was told everything was normal.

Waiting to see specialist, anyone got any help or advice.

0 likes, 3 replies

3 Replies

  • harrington40
    harrington40 Simitai

    Posted

    Sorry to hear, I had my removed back in  May 15. My was full lot of stones. My Dr did a good job getting em all out. Hope u feel much better soon . Try seek treatment in the US and see.
    • Simitai
      Simitai harrington40

      Posted

      Thank you Harrington40, good to hear your operation went well. Waiting to hear if the liver damage is a result of the gallbladder removal, or an autoimmune disorder.

      Hopefully get a final diagnosis and then determine the treatment.

  • Leni75
    Leni75 Simitai

    Posted

    Hi I've been suffering horrible pain in my chest area since my surgery Oct 14. My op was an emergency due to pancreatitis and I developed esophageal spasms afterwards. My surgeon wasn't helpful at all last time I've seen him in May 15. I'm in pain 24/7 and he hadn't send me to do any other tests. Last week I've seen another doctor who send for a MRI so finally I'm getting the help I need. It's a start at least.  I'm really hoping they can find something to justify my suffering all this time. Sorry to hear you're not feeling well. A very good doctor will sort your problem out. All luck for you. It's not fair we're still continuing  to suffer this much after GB surgery. X
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