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Idiopathic intercranial hypertension

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marie34062
marie34062

After repeatedly visiting the doctors since june, 2 weeks ago i was diagnosed with IIH via ophthalmologist, who immediately sent me to A&E.

the following day i was given a lumbar puncture to reduce the pressure from 39 to 18.

i was pretty much free to go following this but im clueless as to how this now affects me.

the symptoms seemed to go, but my left eye still feels odd and my ears are blocked - not as bad as they were, but more noticeable when lying down.

i feel a strong pulse in my neck a lot of the time and dont know if its related?

i desperately want to speak to others who have this, as i dont know who to ask and its getting me down.

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