Is this bppv?

What else does it sound like? I have this feeling like I'm sinking when I sit and falling when I stand, bend over and move around. I'm scared to death. I can't get in he ENT office til Monday.

Sorry didn't mean to scare you but upon reading some more on it it does  sound like BPPV. 

I'm sorry you didn't scare me, I'm good at doing on my own. But thank you for looking it up. I also have MAV and since getting MAV I've been a wreck with anxiety about it and I've heard anxiety comes with it.

It could be that you may have had an MAV episode since it is also associated with dizziness and motion intolerance.

One of the worst thing about all this is there is no real test that cam tell you exactly what is and how to fix it, the other is the dizziness changes, for months it was rocking and swaying sensation, now it's leaning to the left, falling feeling, bobbing feeling, walking on a trampoline, feel like lm siting on a ballon like my butt is moving up and down, I can feel it thru my whole body.

What do you have? What are your dizzy feelings? Do they change?

I have BPPV. I get the spinning of the room, and nauseous feeling in my stomach. If I'm sitting somewhere and get it I feel like I might fall from the dizziness then the room starts to spin. So I would say that no my symptoms don't really change.

Today was like the room was flipping and lately when I'm standing mostly but when sitting it seems like the room is moving.

I finally took a half of Xanax, it helped the anxiety bit still feel the dizziness when moving around. At least now when I lay down I'm not having the flipping like I did today at the chiropractor.

I'm sorry you have this stuff to, are you on meds?

Yes, I take Meclizine only when I get it.  It's for BPPV. 

Hi patty you feel like you are sitting on a balloon remember me saying that. I done that exercise were you stand by the wall and look forward I could feel my back pulsating feeling against the wall like same feeling when I'm sitting down. I can feel it thru my whole body as well

Likewise, I have BPPV and MAV.  My consultant told me not to get the 2 confused.  Now I know the difference.  BPPV for me is when i lie down and everything spins, MAV is when my vision goes wonky whilst i'm upright and I feel spaced out.

Hi

Thank you for responding. I would like to explain my symptoms exactly and see if you can give me any insight. I was diagnosed with MAV and slight M DDS. I've had this condition for 13 months now I did VRT and still do, which seem to help quite a bit I was finally to A point where I felt better 85% of the day or time at three or four days a week of no dizziness. The symptoms that I've felt in the

beginning rocking swings and Swaying especially when sitting, Then things but slowly changing the sensation of dizziness or vertigo I don't know which one is which, I would feel like I was swinging back-and-forth have a leaning sensations a left off balance while I was walking the floors going up and down, In the last 10 days to weeks when I would stand up like to cook dinner I feel like I need to lean against the counter but I had this like falling forward sensation the same when I'm sitting and I move forward and when I bend over like to pick something up just bending forward feels like I'm falling. My anxiety is off the charts this is all I cant concentrate on anything but this and every sensation in my system I just feel like something is worse and it's being missed .If there's any information you can give me I would appreciate it, thank you

Please list for me all the diagnostic tests that you have done, including caloric tests, and their results.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

I had all hearing test, which i passed and hearing was good. I had VNG and did fine until I got to the air in my right ear and the room spinning and falling sensation was so bad they did not finish the test. The ENT said because of the headaches it was MAV, he said really the only rest for that is taking meds and if it helps them it's MAV. I took Amitriotyline for a week and had a bad reaction so he stopped the med. he said I could try nortriptyline but I'm afraid to.

VNG: Did you manage to complete air stimulation for the left ear?

When you lean while standing, do you tend to lean to the left side or to the right side?

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

When sitting or standing I seem to lean to the left . No I was not able to complete the VNG. Someone on the board has suggested possible PPPD. And reading it it fits basically perfectly,

Leaning to one side is not typical of vestibular migraine, which tends to affect both ears.  It is possible that your BPPV has returned.   However, a good clinical examination (with the physician looking at your eyes while he or she positions you on the examination couch) will confirm this immediately.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

 Hi Eleftherio

I was diagnosed with Left ear BPPV 3 years ago and MAV.  I get recurrent bouts of BPPV when i lay backwards at bedtime.  Is there anything I can do to prevent recurrent bout, which take about 5 weeks to clear on there own.

Many thanks for your advice.  Anne.

With BPPV, you need to see an ENT physician with a special interest in neurotology to do the body positioning exercises and relieve the symptoms.  The symptoms will go away almost immediately with few exceptions. 

If I understood your descriptions so far, the last episodes with therapy occurred 6 years ago.  If we assume that this will happen about once every 6 years, then it is simply a matter of going to ENT and putting the calcium carbonate crystals in the ear back to where they belong.

The next step in therapy is plugging specific tubes in the ear with surgery.  But with one episode every 6 years, I would not recommend this.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiology

Fellow of the European Academy of Neurology

Thank you Eleftherio, the BPPV is happening every few weeks, and take about 5 weeks to clear.  I had the epley manouvre about 3 years ago when it was first diagnosed but the bouts recur regularly.  I understand the crystals dissolve on their own eventually, but this takes about 5 weeks in my experience.  I don't fancy having any surgery though to plug the specific tubes.  I may just have to live with it if there is nothing else to be done.  Thank you for your advice though.  Best wishes Anne. 

May I suggest having your vitamin D levels measured next time you do a blood analysis (it does not have to be tomorrow).  I will not say that this can be a factor, as evidence is limited.  But if it is low, fixing it will be beneficial anyway for other reasons, and it may even help with the BPPV.

Eleftherios S. Papathanasiou, PhD, FEAN

Clinical Neurophysiologist

Fellow of the European Academy of Neurology

Thank you, I have low vitamin D from blood test 2 years ago and haven't had it retested recently. Will do.  Many thanks.