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Is this fibro?

Posted , 5 users are following.

Guest
Guest

Hi everyone,

I have lots of symptoms but no diagnosis yet. Can anyone advise please?

Neck stiffness

Shoulder aches

Aches beneath shoulder blades

Tender ribs

Itchiness

Tiredness

Shortness of breath

IBS

Restless legs at night

Stomach upsets

Acid reflux

Anxiety

Stuffiness

Sometimes giddiness

Sometimes numbness in fingers

Aching feet and wrists

General aches and pains all over

Oh my God, when I write it down it's hard to believe.

Any advice welcome.

Thanks

0 likes, 9 replies

9 Replies

  • Guest
    Guest

    Posted

    And:

    Insomnia

    Headaches

  • bronwyn97278
    bronwyn97278 Guest

    Posted

    Hello Cherr;   your symptoms do sound familiar, but the only person/specialist to give you an accurate diagnosis, is a Rhuematologist;  hence, it is best if you could get your GP/Primary Care Giver to refer you to same..............there are many conditions that need to be ruled out first, so this may take a lot of tests, first, so don't get disheartened by this road of never-ending testing..............it is all part of the roller-coaster to get a diagnosis.    When you get this diagnosis, then you need to research all availble treatments, and ask for any advice from others on this forum, who have been there and trialled what works for them/us...............good luck....Bron
  • sadie1980
    sadie1980 Guest

    Posted

    Hi Hun

    Your symptoms do sound that they are fibromyalgia but you will have to have lots of blood tests etc to rule out anything else ! Which is fun I found out I had lots of things wrong like low iron folic vit d and b12 which I did think thank god it was that took all the tabs and the other symptoms were still there finally I got given pregabalin and amitriptolin to which it has and I had my diagnosis in Jan this year by a rheumatologist I've been suffering badly since the birth of my third son in July 2014

    Sadie X

  • victoria_59764
    victoria_59764 Guest

    Posted

    Hello so sorry to hear your going through this. I too have every one of those symptoms.

    I first came on hear regarding a complex cyst on my ovary and the GP is refusing to look into my concern of all theses symptoms until I know what's going on with the cyst.

    I'm at my wits end and finding every day such a struggle. I've never experienced such debilitating symptoms and my god it's getting me down!

    My advice to you is what everybody keeps telling me on here: keep going back to the GP until they refer you. I've spoken to people who said they've waited up to 10 yrs for a diagnosis. It's just not fair!

    I'm already experiencing comments from family and friends as if to say I'm over thinking this and it's in my head. I know it bloody well is not. This time last year I was jogging 10 miles+ a week! This year I'm barely able to walk the dog sad

    Good luck and don't give up.

    Best wishes

    Vicky xxx

    • Guest
      Guest victoria_59764

      Posted

      Hi everyone,

      Thank you for your replies. I'm sorry you are going through these awful symptoms.

      I have had blood tests, heart scan, chest xray, 24 hours ecg and all have come back normal. My consultant said he was referring me to a rheumatologist but that was three months ago and I haven't heard any more. He suggested osteoporosis and fibromyalgia (after I mentioned fibro to him). From everyone's symptoms on this site it does seem like fibro but until I know for sure I don't have peace of mind.

      Some days I can feel good, other days I can feel like I want to stay in bed, but I don't, I can't.

      Best wishes to you all. Glad to be able to chat.

  • kaz_40
    kaz_40 Guest

    Posted

    Hi Cherr It sounds very much like it could be fibro, from the symptoms your describing. Your gp needs to refer you to see a rheumatologist who will rule fibro in or out. Other conditions need to be ruled before you get a definite diasgnoses for fibro. it took me 10 years to get a diagnoses thats after many many tests seeing every specialist you can think of. finally my gp refered me to see a rheumatologist who sent me for more tests he did a pressure point test on me he diagnosed fibro.I would list down all your symptoms write down how you are each day go and see your gp see if they will refer you. take care
    • victoria_59764
      victoria_59764 kaz_40

      Posted

      Hi kaz how are you?

      I can't tell you how frustrated I am ( sorry I just wanted to ask your advice). I'm due to see consultant tomorrow regarding cyst. Was rescanned yesterday and the complex cyst has shrunk so surely that's a good sign, however I have another cyst on my left ovary.

      Anyway I called my doc today to get blood tests results as my thyroid and alsorts was checked. It all came back normal!! Well that's great accept I still feel like crap. She asked me about all my symptoms and I explained them all. This is actually my doc as the one I like is at another surgery and apparently she can't be my permanent doc!! Anyway i mentioned fibro to her and she basically poo pooed it saying it's hard to diagnose and there's no cure etc etc and she wants to rule out anything else. But she said on a good note from a doctors Point of view we can't find any 'medical' reasons for your symptoms. Well that didn't make me feel any better and want to jump with joy. I was fuming. Just felt like she was insinuating that I'm lying of making a mountain out of a mole hill sad. She ended the call by saying for me to make an appointment to see her in a weeks time ( as she's on holiday next week) so she can start from scratch with me. Her words were ' a fresh pair of eyes'. I just know she's going to put all of this down to depression or something as I've been on antidepressants for yrs and yrs.

      I just feel completely and utterly let down and deflated. Why didn't she want to see me today ( this was only a phone appointment). Very easy for her to say hang on in there as I'm on holiday but in the meantime I'm suffering.

      The symptoms have eased slightly in that I've been doing a bit more but that's only because I'm drugged up to the eyeballs and then my god don't I know about it the next day if I've done anything slightly energetic ( going shopping). When I had the vaginal ultrasound yesterday the pain I was in afterwards was excruciating I can't tell you. I'm told the cysts shouldn't cause me any pain.

      I just don't know whether my pain is from cysts, slipped disc or fibro. Don't know if I'm coming or going sad

      I'm sorry for moaning to you. I just don't know what to do. Xxxx

    • bronwyn97278
      bronwyn97278 victoria_59764

      Posted

      Hi Victoria;  just wanting to let you know from own experience..........YES, cysts DO hurt, especiallyn if they tort/twist and then rupture....I have had many of these of a period of 10 years (they had to be lasered via a Scope under anaesthetic).....to me the pain started slowly and then reached a Sharp peak and then descended, until the next time...(when on my R) side originally they thought it was appendicites).....

      ​As for the Rhuematologist....I think it maybe time for you  to ring a reputable Rhuematoligist and make an appt yourself and then tell your GP that you have "this appt for such and such a date and would you please right me a referral".....I have done that here in Aussie..(maybe my GP is more amenable...but it has been done)......even if you have to pay up front, and then claim back from your Health Scheme???.............good luck...Bron

    • kaz_40
      kaz_40 victoria_59764

      Posted

      Hi Victoria I can understand you being so deflated and getting no where fast. I was exactley the same in the end I started to think it was all in my head and \i was going mad. when we are ill with anything else fibro makes it 10x worse,any pain your feeling with something else fibro will make that pain worse.Stress worrying also makes our pain worse the more stress worry the worse the pain becomes. My dr wanted to rule out other things with me before finally after 10 years she refered me to a rheumatologist. Cant say Im impressed with your dr, its no good her poop pooing it, it needs sorting out you need answears.Ive had a slipped disc the pain from that was horrendous made worse by fibro as for cysts Ive never had them but I would assume they would cause you pain also.Is their another dr you can see or change surjury, are you in a position to pay to see a rheumatologist. I cant see that dr refering you untill shes ruled out other conditions. You need to see her turn on the water works say you want refering to see a rheumatologist. You will find that any tests you have normally come back fine. out of all the tests I had a blood test showed low in vitamin d. I was given vitamin d tablets. I had 4 mris ct scan bone scan lung tests heart tests saw back specialist nurologist all tests came back normal thats how fibro works. let us know how your appointment goes today. take care sending you a big gentle hugxxxx
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