1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Lyrica

Posted , 5 users are following.

tina46759
tina46759

Not sure if I have spelt the name correctly I have just been diagnosed with fibromyalgia ( I ended up paying to see an specialist ) after two years of getting no where has anyone else been on or are using lyrica I'm taking 50mg twice a day but hasn't had any effect on my pain I'm also struggling with sleep. I've also received the paperwork for PIP I was told by Independent Living to collect medical notes from anyone within health care team I have seen giving me a better chance to get awarded with PIP allowance anyone gone through this process this way ?

0 likes, 12 replies

12 Replies

  • Boqer
    Boqer tina46759

    Posted

    Hi Tina

    yes when applying for PIP you should get all the evidence you can from any professional, careers, doctors and any one else you have seen. It is all supporting evidence so get everything you can.

  • kaz_40
    kaz_40 tina46759

    Posted

    Hi Tina46759 Its vital you get as much supporting evidance as you can to help with your claim. They also like to have perscraiption of the medication you taking. Ask your gp to write a letter. Also it helps if you have aids to help you eg bath board wheelchair walking stick hand rails. Help with dressing bathing.dressing. You can also ask for home visit which is what I did as have trouble with steps.My dr tried me on every medication going but Im alegic to opoids. I did try lyrica but it didnt agree with me. its finding what works for you and what doesnt its trial error with fibro. take care
    • tina46759
      tina46759 kaz_40

      Posted

      Thank you for your reply this is my second time on this medication . It's taken 2 years to get an diagnosis and I've only now got that because I paid to see a rheumatologist who was brilliant was checked from head to toe and he had all my physio notes GP notes and X-rays & mri scans considering I was seen by a rheumatologist last year at my local hospital who told me to do Pilates and that was that. Now dropping down to a 3 day week as I'm no longer able to work full time so fingers crossed I'm aligable to claim PIP don't know how much I'm entitled too but fingers crossed
    • kaz_40
      kaz_40 tina46759

      Posted

      Hope all goes well with your pip claim give them all the information you can letters off rheumatologist gp letter everything you can good luck
    • tina46759
      tina46759 kaz_40

      Posted

      Thank you I'm going to need it how did you find the whole process ?
    • kaz_40
      kaz_40 tina46759

      Posted

      Hi tina My husband helped me to fill in the form I sent as much information as I could. I asked for a home visit as I struggle with steps and stairs.. I was very very nervous anxiety levels were through the roof, I didnt sleep the night before they were due out. The lady that came out was a bitch tried tripping me on my answears. I ended up in tears with the stress of it. She was with me exactley 1hr, the relief when she had gone.I got awarded pip but being reassessed in dec 2017. Hope the person you see is alot better than she was with me. Im all ready dreading being assessed in 2017 would sooner be out working if I could. 
    • tina46759
      tina46759 kaz_40

      Posted

      I'm so you were treated that way from what I've read it seems to be the norm as if we dont have enough to deal with I am still able to work but have reduced my hours greatly I don't know what amount I will be awarded if successful I've never claimed any form of Benifit throughout my life but needs must

      Thank you for your reply

    • kaz_40
      kaz_40 tina46759

      Posted

      Hi Tina Its the first time in my life ive ever claimed anything, arnt happy about having to do so, but as you say needs must.  pip comes in 2 levels standard living componant is £55.10 Enhanced is £82.30 mobility standard is £21.80 and enhanced is £57.45. Good luck with your claim hope you are sucessful.
    • tina46759
      tina46759 kaz_40

      Posted

      Thanks kaz 40 I will keep you up dated I'm waiting for medical records from GP , pain clinic and rheumatologist before I can do anything I will then meet with someone from independent living who will help me fill out the form . At the moment I'm battling with my meds started on lyrica last week dose is slowly being increased but the side effects and the way it effects your emotions is something else to battle with seems like an never ending battle . Tina
  • martinarvelo
    martinarvelo tina46759

    Posted

    I'm on Lyrica, and I certainly sleep better since taking it.  50 mg a day is a very low dose. . they normally start you on a low dose and increase it, as it can have strange effects. I'm OK with it though.  Can't say I really notice anydifference with pai, but I'm never sure what is tendinitis, peripheral neuropathy, bursitis, fibromyalgia . . . I take 75 mg at night. . .Hope it helps you!
  • martin97585
    martin97585 tina46759

    Posted

    Hi tina46759.

    I was diagnosed about a year ago and was put on amatriptlene (think thats how its spelt its an anti depressant) 30mg which is supposed to help with the pain which did for so lomg but I have deteriated alot to the point where at night I sometimes have to use something to help me walk. Ill be honest the doctors are quite slow at helping, I have anxiety problems every now and again but nothing else. I have thought about trying to get PIP but not sure where id stand to be honest.

    • tina46759
      tina46759 martin97585

      Posted

      Hi Martin 97585 as far as I know you would be aligable to apply for PIP if you google PIP allowance you will find the government website where you can get all the information you need when you ring to request paper work you need to give them your National insurance number bank details nothing major then they send you your form. I have just sent my completed firm back just keeping my fingers crossed I will get accepted for this allowance as I have reduced my working week from 5 days down to 3 good luck
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.