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Mast cell disorder and Fibromyalgia. Request for private consultants North West England.

Posted , 4 users are following.

Wishing
Wishing

Hi, has anyone been diagnosed with fibromyalgia and then with a mast cell disorder? 

I dont have have the rash, but my urologist says I have a lot of Mast Cells in my bladder.

are there any private consultants north west of England, who will run the basic blood work .

0 likes, 3 replies

3 Replies

  • Guest
    Guest Wishing

    Posted

    I suggest you join the facdebook group Mast Movement. It is a closed group and they have been very helpful to me.
  • alex92803
    alex92803 Wishing

    Posted

    Yes i was diagnosed with fibro first by a lazy rheumatologist. I actualy have ehlers danlos syndrome, POTS and the cardiologist is treating me for mast cell activation disorder without an official diagnosis.

  • ninachaug
    ninachaug Wishing

    Posted

    I had fibromyalgi but reduced the symptoms significantly 4 years ago by changing the water I consume to one which has less minerals. I have now taken tests for systemic mastocytosis after my tryptase has repeatedly shown to be above 20. I dont have any rashes either.
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