My husband has been diagnosed with bladder cancer

My husband was diagnosed with bladder cancer in July 2022. At the appointment with the Urologist we discussed what would happen and the urologist showed us the MRI that had been done the day before. He showed us the tumor and he also said that there were several nodules on his lungs (7mm). However he wanted to deal with the bladder tumor first, as these nodules were small and as

this was a stage3 tumor that had gone through the bladders lining into the mussel, it was highly important to get the surgery done and have it removed.

The urologist removed as much of the tumor as he could without going through the bladder lining. As he was unable to remove the tumor completely, he discussed my husbands cancer with a colleague that specialises in bladder cancer.

This urologist was able to cut the tumor and a little of the bladder lining without having to move anything else.

The surgery was a success.

Now all we needed to do was have these nodules seen and what was going to be done about them.

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From the diagnosis in July 2022 we have everything ourselves. we have been completely alone apart from our families.

we have not had one person from our doctors to our health authority contact us. we done know what questioned should be asked regarding my husband lungs. I have telephoned, text faxed and emailed the urologists secretary who we first see only to be emailed back to tell me that I had contacted the wrong secretary as they were the urologists private care secretary and she would forward my messages when the urologist returned from annul leave.

Never heard nothing, I contactact Macmillan help line who gave me the contact details of the person who is from my health authority and they would point us in the right direction. they asked me for the contact details of our health care team, I told them we haven't got a care team, she asked, why not, I told her I don't know why we haven't got one. we'll she told me most people with cancer have a health care team. so i asked who i contacted about the care team. she told me our gp should of done this or at least told you who you needed to contact regarding a health plan.

we are still alone in this iv messaged several oncologist and the reply from a couple of them has been that my husband needs a referral from

our GP. My husband has shortness of breath and it gotten worse, thats not like him.

So finally see a GP (our surgery is a walk in centre with many changing GP,s) she sent my husband for an xray as she thought he may have fluid on his lungs. the xray was clear she phoned us and said for us to return the hospital and go to the secondary A&E (it the upstairs for when A&E is to its capacity)

she said she would forward a referral letter for a CT scan.

We booked in and the reception said they had just got his referral and to take a seat in the waiting area. That was 2.50pm. When there was only 3 people left in the waiting room at 9.38pm I went to ask how long before my husband would have the CT scan. I was told oh he won't have this evening as all from that department have finish for the night.

I was shocked, the receptionist told us if you can get here for 9am you might be able to see if the ct person can get you in before he and she start the daily list.

we got the the next morning at 8.45am and my husband had his CT scan we waited in the waiting area until 11.20am and I asked at reception is someone going to come to see us about the scan as the porterthat showed my husband back through the security doors said to wait and someone will come and see you. No no she said the results go back to the GP in about a week might be a bit longer as there's a bit of a backlog. we not heard from GP and iv emailed my local health authority not heard from any one. I feel so let down by those that are supposed to want to save lives its unreal.

Am I meant to watch my husband of 36 years die because my health authority can't be bothered to help.

where to next for us

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