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No docs can find whats wrong, can you help me?

Posted , 4 users are following.

megan45836
megan45836

Im 20 years old and shortly after i turned 15, i started to get really stiff knees and leg pain. it then progressed to spinal pain and chest pain. the pain is there all the time throuhout my bones and nerves. in the last few weeks, i have noticed loss of feeling in my left hand and lower arm. i have been having tests every week for years and everything comes back normal. what do i do? No amount of docs can find whats wrong. can anybody help diognose me please? 

0 likes, 6 replies

6 Replies

  • aveline
    aveline megan45836

    Posted

    Oh, that sounds terrible, Megan!  

    Could you tell us what tests you've had...? This has to be something and I'm sure there's more to do.  

    If Coeliac Disease was ruled out already, you may try eliminating gluten as it can cause joint pain even if you're just sensitive (and your other symptoms).

    If you haven't had recent blood work for vitamin levels, check D and B12. 

    Is your weight/BMI healthy?

    Please let us know what's been ruled out so far...  HUGS!

    • megan45836
      megan45836 aveline

      Posted

      I've had bone density scans, blood work. I've had a vitamin D problem since I was little but nothing serious. I used to have a eating disorder when all this pain started (weighing 6 stone at age 14-18) I'm now 9 stone and other wise healthy.

      They've sent me off to physiotherapy but my condition gets worse with physical activity. Even doing the dishes I have to catch my breath. Daily life is a struggle and worried I'llbe in a wheelchair. Thank you so much for replying xx

    • megan45836
      megan45836

      Posted

      I also go to the docs every week for answers and its the same thing all over again. Blood work, look at my joints then physio. Pain pills stopped working on me and have no effect too. My partner is being really supported but can be a strain on our relationship including our love life too. I just want to be pain free for the first time in almost 6 years sad
    • peter2824
      peter2824 megan45836

      Posted

      Hi Megan, look at fybromyalgia. Just a gut feeling. Peter.
  • liling
    liling megan45836

    Posted

    Did you go for a heart specialist? Since you having on your left hand side problem.
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