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  3. Chiari Malformation

OVER 2 YEARS OF POST DECOMPRESSION

Posted , 5 users are following.

b2wc97455
b2wc97455

Hi everyone - it had been sometimes since last I was on active communication - I have not received any information from this side until today.

I would like to share my experiences to all of Chiari Patients who are worried about their condition; whether or not there is life after decompression.

Its been over 2 years since my post operation - I thought I will never achieve this quality of life any more after this operation - it took time to heal- but hey..here I am..enjoying my life to the fullest- hence worth..DONT WORRY ..get your decompression as soon as possible - choose the right more experience Neurosurgeon who has had a success rate- listen to what they advice you to do after operation - dont do too much - listen to your body - regular stretching exercise (no running - jogging-too much cardio exercises) - make sure you drink plenty of waters and last but not least regular deep tissue massage is good for your general wellbeing.

GOOD LUCK

0 likes, 4 replies

4 Replies

  • clarey1
    clarey1 b2wc97455

    Posted

    Your advice doesn’t suit everyone. You always portray someone who knows more abou this condition than anyone else. It’s dangerous so please stop. 
  • Apple62
    Apple62 b2wc97455

    Posted

    I’m so happy u had a good experience.  I did not. I’m in horrible pain.  Everyone is different and have different problems.  If your csf flow is blocked, u have no choice but surgery.  Good luck to everyone and hope u have a good experience.
  • leanne73120
    leanne73120 b2wc97455

    Posted

    Did u still feel rubbish an numb head a year after surgery?
    • courtney2903
      courtney2903 leanne73120

      Posted

      hiii i hope you see this and teply , i have recnetly had decompression surgery last week and half my scalp/ head on rught hand side feel either numb / tingly/ possible fluidy? very odd sensation its numb but dosent feel just numb ? i am going to ring my hospital back but just curious is it common ?

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