Please help looking for someone to Compare symptoms with!! Anything will help!
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I have been having trouble with my b12 along with an array of other medical problems I am trying to sort out. I was trying to reasearch and stumbled across this site and thought why not give it a try and see if anyone out there was feeling the same and if we could comepare symptoms. I am just ready to start feeling better again and more like myself. Myself along with many doctors and specialist have been trying to come up with answers test after Test ran for over the last year. The mornings I wake up externally still and it takes about 15 min for me to straighten out and be able to get up and start my day. Through out the day I have this weird numbing sensation in my hands and fee. pins and needles in my hands, arms, feet, and legs if I sit or stand for more then 5-10 min. I've recently lost all of my reflexes in my legs along with my appetite completely diminishing. I had my gullblader out 4 years ago and also still have many problems with my stomach I have a BM about 8 times a day and diarrhea and pretty constant pain. (tmi i know I'm sorry) but Most of my pain is in my knees. I used to be a dancer and a gymnast and had very strong legs and over the last couple years my legs have turned so week. The task of going up and down, getting in and out of the car, getting dressed are just a few things I struggle with on a daily basis. There are times they hurt to bad to even walk on. Also I have fallen many times it feels almost as my knee is slipping out of place and just giving out. It's quite embarrassing when it happens and you are out in public. I am not here to sound like a pity party I am so ready to find some answers. I have finally been accepted into rhuemetology so I'm hoping that I will find someone soon. But I was also looking for answers/ comparisons to other patients you might be experiencing the same symptoms/close test result rage to my own. Any help is very much appreciated thank you!
Here are just some of my test results:
My b12 levels are a 179 /ml
vitamin D is also at a 25
Bilirubin is slightly elevated To a 1.6 /mg
AST 71 / L
ALT 56 /L
ANA: positive (homogeneous)
0 likes, 1 reply
peter27120 amanda3434
Posted
Hi Amanda
Just a Quick firsts are you currently taking cortisone as I have or was diagnosed with SLE just over 18 years ago and prior to that used to play squash , run most mornings. .. I lately started getting seizures but Epilum keeps that under control , Cortisone taken every day other auto ammune depressant tablets like methatrexhate , miracle drug but the long term affects are bone and joint disintegration , 3 years ago I had a full specific knee replacement and L5 ligament ( piece broke off ) the knee op is a great operation that went extremely well until the nurse moving me from one bed to another dropped my leg snapping main tendon , as we chat I was rushed to hospital 3 weeks ago as the tendon released from the knee causing a massive infection across my knee , I had the best South African doctors open and clean out and we'll on my way to recovery but will have to add a specific antibiotic in Tablet form and walk with one crutch, got lucky again ... If you visit your Rumatologist please ask what affects the suppressant medication you are currently on that affect your joints especially your knee , There are amazing break throughs with knee replacement swelled and in this modern World no point suffering with bone on bone pain , let me know how the appointment goes and don't forget to ask Q , all the best , Peter