Dear Ms JH
Thank you so much for your very informative response to my query - it is always so useful to hear of someone else's experience and very reassuring. I'm glad to hear that your knee surgery went well and you were obviously well looked after.
I have noted what you say about increasing the steroid dose on the day of invasive dental surgery and for a few days thereafter. You mentioned that you had to triple the dose to 45mgs for a few days so does this mean you were on a dose of 15mgs leading up to the surgery? I have recently decreased to 4mgs after being on 5mgs for over 5 months. Like you, I have been on Prednisolone for just under 2 years (21 months) starting dose 40mgs, having been diagnosed with Temporal Arteritis following one year with serious illness which wasn't diagnosed as PMR until development of the Temporal Arteritis. I have since heard that people who suffer from PMR without being prescribed steroids have a 7 out of 10 chance of contracting Temporal Arteritis as opposed to 3 out of 10 being treated with steroids. Needless to say, therefore, my risk was high and I was unlucky!
I will try and make contact with my rheumatologist tomorrow, although he has said several times in the past and is adamant that steroids do NOT stop your own body's production of cortisol and seems to believe that once you reach 7.5mgs and below, everything is balanced out. It is so confusing when even the consultants have different opinions and different approaches. But then I suppose this is a very confusing illness even for the specialists - it is very much a case of trial and error!
Once again, thank you so much for your kind and helpful response and I wish you a speedy and complete recovery from this illness, likewise for everyone else out there in a similar position.
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