PMR returned
Posted , 4 users are following.
I would be very grateful for some advise.
I am 59 years old and was diagnosed with pmr and giant cell 8 years ago and i managed to get off steroids a few years ago.
In the last few months all the symptoms of prm are here again (luckily not giant cell).
I am stiff in my shoulders, neck and back, which lasts all day. I cannot get up from sitting and cannot move in bed.
My blood results have always been normal. Within 3 days of steroids i am a 'new chick' again.
My problem is taking steriods with covid about. Do you i should go with the stiffness and ride it out?
Taking steroids has left me with cataracts and weak muscles.
I really do not know what to do.
Angelina
0 likes, 3 replies
Anhaga angelina29160
Posted
What dose of pred are you taking? Personally I'd go with quality of life.
If you go to HealthUnlocked the PMRGCAuk community, you will find a much more active forum where you'll get lots more opinions! Sorry I can't post a link.
EileenH angelina29160
Posted
Take your pred!!! I've taken it all through Covid as have all the other people with PMR on this forum
https://healthunlocked.com/pmrgcauk
where all former members of this forum now meet since this forum became unusable and then, as a result, almost inactive. If they don't notify users of new posts - no-one visits.
anne94388 angelina29160
Posted
I've been off steroids and on HCQ for 10+ years for PMR dx. It has its own long term negative side effects, particularly at higher doses. I actually stopped taking it mid 2020 for about a year because of some issues (one naturopath asked me why) and making other changes to get healthy. I have subsequently resumed at a lower dose. It doesn't get rid of all the pain and stiffness but it is at a tolerable level and it is more than enough to work as a prophylactic for COVID.