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RLS

Posted , 6 users are following.

dvid29876
dvid29876

Hi, I'm new to the group so be nice haha...

Anyway - after suffering R. L. S (on and off) for about a year now.... I went to my G. P yesterday and was prescribed PRAMIPEXOLE (0.088mg) tablet (ONE at Night)

It made absolutely no difference last night so hopefully better luck tonight!! X

1 like, 11 replies

11 Replies

  • leanne51294
    leanne51294 dvid29876

    Posted

    what country are you in dvid?

     

    • leanne51294
      leanne51294 dvid29876

      Posted

      hi dvid, new zealand here. I was just wondering because some countries dont have the same medicines that we or you can get.  We are sunny in nz today but pretty cold, its a cold snap the last week. 
  • Publio
    Publio dvid29876

    Posted

    That's what I've been taking for about 10 years now and it works perfectly. Naturally, I've had to adjust the dose 3 times during this period. I started with 0.125mg and at the moment 0,375mg does the job. But I have to remember to take it no later than 7pm but it takes a while to kick in.

    • Publio
      Publio

      Posted

      * BECAUSE it takes a while to kick in.
  • MezaJarJarBinks
    MezaJarJarBinks dvid29876

    Posted

    dvid,

    You have walked in to a very complicated condition that can be very difficult to treat. Everyone is different. (I have had RLS for many years.)

    First, I suggest that you go to www.RLS.org (RLS Foundation). [/b]To get full access to everything they offer you must join. I have been a member for many years. They are wonderful people, and help both patients and doctors.

    Second, you must educate yourself on all the different meds. Be aware of "augmentation". Many doctors are not aware that meds can sooner-or-later make your RLS much worse. (Opioids don't do this, but of course they are very controversial these days.)

    Another thing you must learn about is your "ferritin iron level". Many doctors do not routinely test for this. People with RLS need their ferritin levels to be much higher (100+) than those without RLS (35). The RLS Foundation has lots of info about this.

    A good doctor can be hard to find. I suggest you consider doctors that specialize in sleep medicine, neurology, respiratory therapists, even allergy doctors sometimes take an interest in this.

    May God bless you.

     

  • valda23668
    valda23668 dvid29876

    Posted

    I take small dose of SIFROL and it also needs about 2-3 hours  to kick in and then I sleep 7-8 hours
  • kate_17873
    kate_17873 dvid29876

    Posted

    It won't make any difference! Nothing works. No meds for it except maybe morphine. Just gotta live with it. I'm in same boat.

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