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Seasoned Bell's Palsy people

Posted , 3 users are following.

sharon24495
sharon24495

Anyone with 2 or more years of Bell's Palsy?

 

0 likes, 10 replies

10 Replies

  • donna07054
    donna07054 sharon24495

    Posted

    No surgeries, but I do have facial and full body massages every 3-6 weeks it helps so amazlingly , i had alot pf sweeling in my check every month but now that seems to be better with regular massages from a licensed massause, i had alot of ear pain my eye brow is still numb although i can move it just seems i lost some feeling in it an my eye lid, for people that dont no me it is not noticeable but when i look in mirror or take a pic its noticable to me, i had a very hard time when it first happened , was out of work 45 days , could not drive either. Couldnt go out until i could see improvement, but thats just me. 
    • sharon24495
      sharon24495 donna07054

      Posted

      It seems my cheek is swelling a little now.  Haven't had that feeling since the beginning.  Is that going to happen forever????  I have a bitter taste and dry mouth too.  I didn't know this would keep coming back.  No one suggested massaging so often.  I have seen plenty of Drs. and they didn't stress that.
  • sally25567
    sally25567 sharon24495

    Posted

    Hi Sharon.

    I have had Bells Palsy for 1 year11 months. I have been fighting depression because if the feelings of despondency. 

    • sharon24495
      sharon24495 sally25567

      Posted

      What have you done as far as any treatment, if any?  I know there isn't much out there.  The lucky ones get over this in a few months.  I think the older you are the harder to get rid of.  Are you a senior citizen? 
    • sally25567
      sally25567 sharon24495

      Posted

      I am 61. I had the usual course of treatment. Then told that I might recover in a matter of weeks months etc. I gradually improved over 6 months or so but can't shake it off. Friends tell me that I look almost like my old self. Trouble is I don't really and I feel like a different person to who I was 2 years ago.

      after making a fuss at the doctors I have finally been referred to a neurosurgeon . He was thefirstperson to actually listen to me and he is trying to find me some physio. I havnt heard anything yet though but living in hope 

    • sharon24495
      sharon24495 sally25567

      Posted

      I feel like you do.  Everyone says I look great but I don't think so.  I did Physical therapy, which you can do long after onset of Bell's, and that may help.  You need a PT specialist for Bell's.     It is a specialty.  I did botox with a neurologist, which of course wears off.  I did eye lid surgery because I wanted it anyway.  The eyes are different size, so don't know if that was the way to go but the loose skin is gone.  
    • sally25567
      sally25567 sharon24495

      Posted

      Yes we do sound like we are having a similar experience Sharon. I have been considering Acupuncture as it can't do any harm and I know someone who recovered after it. I am also going to start yoga in a few weeks, just waiting for recovery from a hand operation. 

      Do you have less stamina as I get very tired in the daytime if I try to do too much. I actually take a nap sometimes ! Makes me feel older than my years, good job I have retired as I don't think I could cope with a job. 

      Every day I wake up with the hope that it will have gone. I know that indeed to stay positive but it is a daily struggle........

       

    • sharon24495
      sharon24495 sally25567

      Posted

      If you are having acupuncture it should be done by a liscensed Dr. not just anyone who does acupuncture.  It is special for Bell's Palsy.  Insurance doesn't cover it but I suppose you know that.  I am 10 years older than you but I don't notice any tiredness or  need a nap. My bitter taste and dry mouth seem better today, hooray.
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