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should I be tested for Fibromyalgia?

Posted , 2 users are following.

DiddyC
DiddyC

I am a woman 45, I am slim but im not in the best of health saldly, I have what you call Medullary sponge Kidney disease with lots of complications, interstital cystitis, Chronic Migrianes, My doctor mentioned to me I could have Fibro do to my wide spread pain, I feel ill all the time, my body just aches all the time, my fingers, knees, neck and shoulders,  ankles, I feel like my skin hurts sometimes even my hair. there are days I just dont even want to get dressed. I don't take much medications at this time, just Maxalt for migraines, azo and estrodiol, tremadol for pain. so I just don't think its meds making me feel this way, I have had migraines for years. MSK for 4 years and IC for two. Does it sound like I could have Fibro? I am going to see my doctor next week to talk about my symptoms!

0 likes, 4 replies

4 Replies

  • charlotte1824
    charlotte1824 DiddyC

    Posted

    Hi there, that does sound like fibro symptoms but I wonder if the estrodiol could be causing some of it, when I've read about hormone inbalance and treatments I did notice a lot of people on estrogen therapy reported a lot of aches and pains, headaches/migraines is also top of the list of side effects. Do you remember a starting point?

    The treatment for migraines is often and anticonvulsant

    The treatment for fibro is often an anticonvulsant

    The treatment for IC I have read is often an anticonvulsant

    So perhaps you should discuss with your dr about an anticonvulsant, when I was reading reviews for gabapentin I noticed reviews for all above conditions so it might be one to mention, others are pregablin, carbamazepine and possibly some of the antidepressant meds that control pain not depression such as amytryptlyn and nortryptlyn.

    I don't know how medications would interfere with your kidney disease but it's worth discussing your options. Good luck

    • DiddyC
      DiddyC charlotte1824

      Posted

      Thanks for getting back to me, I have been on estrogen since 96 do to a hystro. I have had migraines way before that. I went off the estrogen for about 6 years and I got to where I couldn't walk my joints hurt so bad and the night sweats where unemaginable..... I have tried amyrtyptlyn before for migraines but it didn't seem to help much at all just made me feel depressed because I felt drugged and sleepy all the time. I haven't tried pregablin or carbamaepine before but will talk to the doctor. I can't take antiinflannatory because of my kidney disease. I talk to my doctor about these options. Thanks again....
    • DiddyC
      DiddyC

      Posted

      Well It was confirmed today, I do have fibromyalgia, now comes the next step dealing with it......
    • charlotte1824
      charlotte1824 DiddyC

      Posted

      sorry to hear that, what options did they give you for treatment? Make sure you run everything past your kidney dr first to make sure they are safe to take.

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