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So Confused with a diagnosis of Eustation Tube Dysfunction

Posted , 7 users are following.

betsy70690
betsy70690

My GP can tell my eustation tubes are not opening up all the way. My ears frequently feel full. Apparently it is confirmed I retain water behind my ears. (MRI) But after 3-4 ENTS specialists I've been told everything from TMJ dysfunction to allergies to Ménière's. I've been been given a referral for tubes, I've been told I don't need tubes. The fullness affects my vestibular system, leaving me dizzy. Where do I go next??

0 likes, 13 replies

13 Replies

  • jazzyanne
    jazzyanne betsy70690

    Posted

    Hi Betsy how can your gp tell , what test did he do are you in the uk
    • betsy70690
      betsy70690 jazzyanne

      Posted

      He watched the inside of my ear with some sort of scope, while I held my nose and blew until my ears cleared. Othe ENT's have done this as well and don't comment on th ETD.

  • carmen17756
    carmen17756 betsy70690

    Posted

    Oh Betty I so empathise with you! I'm in the same boat as you! I've seen three ENT consultants on a private as well as on the NHS basis all giving me three different diagnosies from menniers to fluid trapped inside inner ear to migrane! I've tried various meds nasal sprays blowing nose exercise antihistamines and changes in diet! But my ear still feels full of pressure with a loud humming noise and all the symptoms that go with that.

    It's been going on for a year now on and off (more on than off! ).

    I'm fed up miserable and frustrated! Thinking it may be ETD now but no one seems to know or how to relieve me from this misery. ...

    • betsy70690
      betsy70690 carmen17756

      Posted

      Thanks for the response, always nice to know we are not alone. Mines been 4 years. I also get migraines and have for 30 years.
  • Ladymccoy
    Ladymccoy betsy70690

    Posted

    I sadly have the same , now for 28 years and it is beyond depressing.  I have had tubes in my ears which gave me relief for a while but back to the same old and now 2 doctors tell me it is just because I have hearing loss.  The pressure in the ears, the cracking and popping, the hearing my own voice in my head.  And once in a great while I can get the left to open and hear normal but it closes again.  I am told my tubes are working properly and no fluid.  I am beyond crushed and just recently they have started to ring.  
    • jazzyanne
      jazzyanne Ladymccoy

      Posted

      I have been like this for a few month, still waiting on ENT apt, yesterday i took a heavy cold and it seems to have settled my ears , i wonder why ?plus what causes the tubes to stop working x
    • Ladymccoy
      Ladymccoy jazzyanne

      Posted

      I have a possible option , I do have TMJ not sure if anyone else has it but just researching it last night find out that hearing loss, fullness and clicking can be from this.  I will keep everyone updated as I know more and if I can get help for this as well. 

       

    • betsy70690
      betsy70690 Ladymccoy

      Posted

      I was told that as well. For me the treatment was $10,000.00. After $5,000 spent and no improvement for me, I stopped the treatment. You might get a free consultation with an orthodontist about your jaw, TMJ joint etc. TMJ is another tricky and complex issue.
    • Ladymccoy
      Ladymccoy betsy70690

      Posted

      There is only one person doing this treatment , it has helped hundreds of people and at this point I am going to do it as I really believe it  is from my TMJ.  Actually the reasearh I have done so far is that orthodontists can cause TMJ and I had braces and dental work and I know my bite was thrown off by a dentist that refused to fix it and none will since that time.  They really don't know much about bite causing issues.  

    • betsy70690
      betsy70690 Ladymccoy

      Posted

      Good luck, I hope it works for you. If you are talking about middle TN, that's who I went to.

  • ayzzie19624
    ayzzie19624 betsy70690

    Posted

    Is it a symptoms of eustachian tube dysfunction?

    Is it dizziness. I almost always feel dizzy like im in a boat. I feel fullness in my head. It is like i have a mud inside my head. I start last nov. when i had cold. I start feel light headed then later get worst dizzy everyday. If i swallow i can here a click sound. When i yawn it relief some of my dizziness but it will go back again then later. Its been almost 3months now. I feel frustrated i not like to feel like zombie everyday. I when to ent but he did not see anything in my ear. Just give me betahistine which not help my dizzines. Its anti vertigo meds not work good for dizziness. I feel some relief to read forums everyday that i am not alone struggling this symptoms. Can someone tell me some advice here..i need yor help. Thanks

  • myriam62
    myriam62 betsy70690

    Posted

    I'm in the same boat. I was even told shingles!! It's been almost 5 months. The pain is really bad tonight. I see my 5th ENT next week. I'm leaning towards holistic approach via a chiropractor and supplements. I was told the only doctor that would do the balloon treatment is in Boston!!' Any suggestions?

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