Posted , 6 users are following.
It's been ten months after I have undergone surgery for CES. Though the numbness that I experienced in my saddle area and legs have gone down, I still have back pain and also find it difficult to pass urine and to defecate. I am very worried. I need help please. Thanks
0 likes, 6 replies
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jessica80560 EricOklah
Posted
Talk to your doc... It's been 2 years since my surgery and I have to make myself go but I'm all the way numb there. I've heard that people see a urologist and have success. Good luck to you... This is no way to live at my age but it's better then paralysis so im thankful
EricOklah jessica80560
Posted
keith94082 EricOklah
Posted
Keep trying to go it's the nerve to the muscle that controls ur wee and poo.
I stopped going a wee I had a subpubic catheter for 18month but my bald was so sore they at to give me a permanent wee stoma they at to remove my bladder at a later date. I at to have a permanent colostomy. I had that 1st. I was left disable as I was left in full compression for 6 days. I had urgent surgury but the damage was done. Go see a urologist and a surgeon for ur bowel they need looking at see a neoro doctor they should be able to tell if the spectre nerve is damage
Guest EricOklah
Posted
It’s been 4 years since my Cauda equina (with a complication of discitus). I was told that I would be at 18 months post op would basically be how I’d be for the rest of my life,this is because 18 months is deemed to be enough time
for nerve regrowth. I still suffer bladder and bowel issues,& often don’t realised that I’ve urinated or defecated.
im no longer in such 10/10 chronic pain as I was 4 years ago but still have find walking for more than 10 metres impossible without stopping,and after I have walked that distance my back feels on fire. I was referred to the hospital to see a bowel specialist,he has recommended that I have a small device inserted into my but checks will stimulate the nerves in this area,hopefully stopping me having “accidents”. I am due to have this operation before Christmas, and i’ll Let you know the outcome. For my urinary issues,I go from retaining to not knowing I’ve passed it. I was taught how to self catheterised,and this isn’t easy as I have Rheumatoid Arthritis as well,and my hands are very stiff.
When I had my Cauda equina,I had never previously heard of this condition, and it seems that even some some medical staff I talk to haven’t either! I’m regularly asked by nurses and some doctors whstvit is when they are taking my medical history! If I didn’t have a friend who is a consultant doctor I would never if realised that it was serious. Luckily he phoned me up when I was first experiencing the most horrendous back pain and said “I would like you to go to the hospital now,it’s a rare condition but it’s important that they rule it out,and so I did-I am eternally grateful for his advice. Unfortunately,it was the weekend and only a junior doctor was on call,and when I suggested that It caused be CE she replied “don’t be so stupid!” The head doctor came in the following day and took one look at my notes and said “prepare her for theatre-NOW!
jerome09112 Guest
Posted
I had cauda equina syndrome back in 2014 I still have problems with my water works book take tablets to help I still suffer from horrendous pain in my back and both my legs depends not as bad as before my operation I take laxatives for bowel movement I still have drop for 5 years later and I can't walk more than 10 m 20 m without having to stop due to pain I still have sexual problems but at 55 I thank god that I'm not in a wheelchair I hope things get better for you
rose12440 EricOklah
Posted
Have you found a doctor to help you? It took a year for me to find another surgeon who would even listen to me about my problems which were the same as yours but I also had paralysis in my right leg, all of which STARTED with having back surgery , woke up after back surgery with all of those problems.The second surgeon tried to correct the mess the first guy made but the damage hs been permanent. The second surgeon diagnosed CES CAUSED by the first surgeon, but I still could not sue. I have been finding out how woefully inadequate doctors are to help you with anything significant(something that doesn't go away on it's own).I hope that you have done better.