Surgery to n Canada?

Posted , 5 users are following.

Hi all, I'm in Canada and I have a question. My GP says she can't refer me to a surgeon until I have had FS for at least two years. Has anyone ever heard of this? I've been 15 months, I'm type 1 diabetic and I feel like I'm dying a slow death. I've had two steroid injections......nothing. I also had a distension which was terribly painful and gave me only a slight increase in rom. Any advice on getting into a surgeon sooner? I'm a mom of three kids under 8 so moving and using my arm is a must! 😁

1 like, 6 replies

6 Replies

  • Posted

    Your doctor is 100% right with that call. I too have type 1 diabetes and was told the same thing back when I had it in my left shoulder. This condition requires a lot of time to get over. Other methods to speed it up can be risky, and even make things a lot worse. I know what you're going through, but hang in there. It will get better eventually. Heat, massage, and analgesics will help get you through it too.
  • Posted

    Hi Slibby - I can't say about the two year thing, but like Midonda says, this takes time. Even with surgery, time is needed in follow-up physio etc. Consider reading back through the forum and find the tips that will work for you. Your kids will be fine! It's the lack of sleep at night that wears us out so much with this FS, so do be upfront with your doctor about meds that will work for you. I'm in Canada too & got a long-acting codeine to help at night...just wished I'd known to ask weeks earlier. Have a look at this article mentioned on another post and glean what advice might fit for you (Google ADHESIVE CAPSULITIS: USE THE EVIDENCE TO INTEGRATE YOUR INTERVENTIONS) 

    Sorry you're in this FS club! 

    Liane

  • Posted

    There is a study involved 50 adult men and women; 4  of 10 patients each received up to three ultrasound-guided extraarticular injections of varying doses of XIAFLEX separated by a minimum of 21 days. All patients were instructed to perform home shoulder exercises. The fifth of the ten patients received no XIAFLEX injections and only performed home shoulder exercises. The study’s primary endpoint was the change (in degrees) from baseline to the day 92 follow-up in active forward flexion in the affected shoulder compared to the exercise-only . Safety assessments were made during all study visits and immunogenicity testing was performed at screening . Xiaflex has worked for my hands and my shoulder. Check online for a shoulder specialist experienced with Xiaflex injections. 

    Xiaflex is a protien that eliminates the facia collagen tissue build up which restricts the movement of the shoulder. There is a lot of info online and it can be another alternative for you to consider. It has been approved in the by the FDA in the US. Not sure about Canada. 

    Having a frozen shoulder is miserable I hope you can resolve it soon.

    Good luck. 

     

  • Posted

    Thanks. I know this FS thing will take time, was just hoping to get into a specialist sooner as once my GP makes the referral I'm still 6-8 months waiting! I have been doing Physio. I go in every week and do my home excerises daily. The sleep is getting to me for sure. I can't take codeine or morphine and nsaid drugs trigger my colitis....so not sure what I can do at night. I've been taking an aspirin and using some pain gels on the shoulder but they only last a couple hours if at all. Other drugs won't last all night.  

    I just cannot believe there isn't more that can be done. The doctors and physiotherapists basically say yes, this sucks and is painful but hopefully in another year or two (or more since your diabetic) you'll be okay. 

    • Posted

      So sorry you have to wait so long to see a doc.I kept my shoulder in a special shoulder restraint for a few hours a day. It helped relieve the pain just to not move and just the weight alone from my arm was painful.  I used aspirin rub for swelling.

      Hope you can look into Xiaflex injections it really gave me my life back.no surgery needed after.

      hugs and have a better day! confused

       

  • Posted

    Well, I don't have diabetes, but I do have colitis.  I was diagnosed with FS today.  I had an injury back in November 2015.  I had hoped that a little physical therapy would cure it.  It seemed to only make it worse.  After 18 physical therapy sessions the doc finally sent me to the Specialist.  He did some movements that hurt like hell.  Ordered an MRI Arthrogram and a nerve test to make sure it wasn't coming from my neck, and to make sure I wasn't having nerves destroyed.  The tests show that I have adhesive capsulitis, or Frozen shoulder.  I seem to gettting better, and I am thankful for that.  He said that people with diabetes and/or thyroid conditions have a tendency to not get better as fast.  And there is no real studies been done to see what the average time, or treatment plan, works for diabetics.  I wish you well and by all means ask for the oxy or hydrocodone.  I have colitis and I take one of these types.  Not a lot, but enough to get some sleep and function.  Going on disability is not an option for me.  I have too much I want to do and that is not the path I want to take.  Good luch. 

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