Vestibular Neuritis and Vertigo?
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Hello,
Back in February I experienced an odd episode while driving down a bright highway where the light flashed between the trees constantly. I started seeing aura and it developed into a major migraine (I've had a handful of migraines in my lifetime only, not chronic ones- I've also been chronically congested for about 2-3 years). It seemed like after this that I started having headaches mostly on the left side of my head based mostly around the ear and neck area. My vision blurred and then fixed itself, but then I started having this odd sensation while driving, like my eyes didn't know where to focus. My head was really foggy like I couldn't think, and when I shook it it almost fely sloshy,like my brain was sloshing in a fish bowl. The dizziness then began to get worse while looking at any type of technology or tv. The headaches weren't that bad (except for that first one in February), but my anxiety quickly took over. I had an MRI without contrast just before Easter,and it was fine. At this point they made me appointments with a neurologist, but not until April 28. The more I started researching, I also made appts with an ENT on April 27. I was miserable for about 3 weeks, until my antidepressant began to calm me down. AT this point I could watch TV and look at a computer again, as well as drive, but was still plagued with this disequlibrium. On another of my ER visits, the doctor said my neck was extremely stiff and to do PT or chiropractor. I went to PT and she asked if I'd had any illnesses around the time this started. I'd had a very bad sinus infection and was put on 12 days of steroids, and it was about 2-3 weeks later that all this started. She mentioned Vestibular Neuritis, and I've been doing the vestibular PT ever since April 1.
Fast forward to now, my disequlibrium is somewhat better, but not 100%. I still feel funny when driving or riding in the car, and I'm terrified to go on any amusement park rides with my family. I finally saw the ENT last week, with the hopes that she'd be the missing piece. Well, she said she bet it was migraines and told me to go to the neuro. She did however, scope my sinuses and they were extremly swollen and told me to use saline and a steroid nose spray daily or I'd be needing surgery in 10 years. I went and bought the sprays, but was really sad after hearing the 4th person tell me this was migraines when I feellike this isn't. The next day I saw the Neurologist expecting to hear the same thing, but she told me she thought it was my sinuses. She wants me to continue the nose sprays and come back in 2 weeks, as well as continue the vestbular PT. I asked her about the Vestibular Neuritis, and she said people have extreme vertigo with it, and I haven't had that.
My question is thouse of you who have been diagnosed with VN, was your dizziness vertigo? Or did some of you just have a feelingof disequilibrium,like not knowing what to look at? Also, how long has it taken you to regain 100% function? I'm going on week 12 of this, and am starting to doubt if I'll ever be back to 100%.
Thanks,
Tiffany
0 likes, 19 replies
amanda38358 schmoopee98
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DizzyLizzy68 amanda38358
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amanda38358 schmoopee98
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schmoopee98
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The PT has also been working with my neck at the beginning of the appts, too!
amanda38358 schmoopee98
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amanda38358
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schmoopee98 amanda38358
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DizzyLizzy68 schmoopee98
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I do not have vestibular neuritis, but wanted to respond.
I have had all your symptoms- all of them. And I have also had facial pressure on the left side, neck/shoulder pain on the left, stuffy nose on left, and eye watering on left. THis is also the same side that I used to get my very occasional migraines, maybe once a year. I even have tinnitus on the left. My road to a migraine diagnosis included a camera up my sinuses, CT of sinused, the pulling of a root canaled tooth on that side (that didn't help), tons of nasal sprays, some costing over $100 a bottle. It was all migraine. And the dizziness, visual oddities, not being able to form words (thus sounding like an idiot in conversations). All migraine. I went on propranolol as a migraine preventative AND went on STRICT migraine diet and it worked for a year. Now it's back, and I am upping my dose and ditching the caffeine totally. I may be switched to Verapamil if this higher dose doesn't work.
schmoopee98 DizzyLizzy68
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Did you ever have migraines before through out life? I've possibly had a handful, tops, and this all seems to have come out of nowhere. I'm 36 and hate to think the rest of my life will be like this...
DizzyLizzy68 schmoopee98
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There are other meds besides this one. This just happened to be the one they started me on, and since it worked, i stuck with it.
Yes, mine just started out of the blue. I have had classic migraine with aura, but only one every year, sometimes every 3-4yrs. I've never, ever been a major migraine person. Dr. says that happens, and in my case, probably triggered by perimenopause (I am 48). Are you taking birth control pills? For some women, they can be VERY problemmatic for this condition. For others, it helps the condition! Look at what is going on hormonally with regard to meds.
amanda38358 schmoopee98
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amanda38358 schmoopee98
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schmoopee98 amanda38358
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amanda38358 schmoopee98
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schmoopee98 amanda38358
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