Vulvodynia for 12yrs and fed up!!!!
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Hey all,
Started to write this as feel pretty alone with having Vulvodynia.
Mine all started around 12 yrs ago from putting essential oils in my bath. Few days after I was in so much pain and swollen. I went to my GP and they checked me out and couldn't see anything obvious. I then had constant vulval pain everyday. I was seen under multiple Gynae Consultants including being seen in a Vulval Dermatology clinic, I had biopsies, tried different creams (which always made it worse). I then discovered not letting shampoo and shower gel run down me made the pain not something that happens everyday. So I now have to wash my hair leaning over so it doesn't run down me and the same with washing my body. I have learnt to live with the odd washing routine as it was worth doing to avoid being in pain. I wash my knickers in a non perfumed detergent to avoid any irritation. I had years on frequent pain. Sometimes it would be consistent and other times it might start in the morning and a few hours later go away. It's ranged from burning, soreness to sharp nerve pain. As I am sure everyone has, I started to research, this obviously suggested STIs, Cancer and other scary things, so mentally this has really affected me. Through my research I found people were being prescribed Amitriptyline, so after many visits to the GP I got them to prescribe me it. It has definitely helped the tight muscle pain I also used to get particularly when stressed or had done exercise. Anyway fast forward a few years and intermittent pain, I recently started doing Pilates and unless just a coincidence I am having a major flare up, I am in pain again pretty much everyday to the point it woke me up last night. Feeling really low and isolated as no one really understands unless they suffer with it. I have been referred to a Gynae pain Psychologist to help me mentally cope as I have just got myself in a state and just feel like its something dirty where its in an intimate place. I thought I would share in case anyone else is feeling the same. 😦
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