1. Community
  2. Brain and nerves
  3. Neuropathic Pain

whats next for Neuropathy patients

Posted , 8 users are following.

leanne10524
leanne10524

Ive suffered with chronic pain in groin area for over 2years now after a few tests and Mri exam my specialist Dr Chawla told me theres no cure for Neuropathy besides help with medication and pain clinic. None of the painkillers have worked, bad time with side affects! I recently had Accuputure with Gp only for the pain to spread all over body.

I have had no help and as single parent to 2 children this puts a strain on my depression. I don't want this to take over my life. Whats out there to help because im getting no where with the Nhs?

2 likes, 12 replies

12 Replies

  • carol18316
    carol18316 leanne10524

    Posted

    Hi you need to go back to the pain killers and keep trying for one that suits you.
    • leanne10524
      leanne10524 carol18316

      Posted

      I don't want to rely on just painkillers there has got to be more out there!

      Is there anyone that has tried something that worked even for a little while?

      I had injections in the groin inflammation and local anaesthetic, that work for awhile but nhs won't give me any more!! Does anyone know if i have rights to appeal?

    • jan1961
      jan1961 leanne10524

      Posted

      Hi ,I know it seems crazy but for me exercise and activity are my allies . I think because they release endorphins and make me feel normal lol. I also try to eat healthy and get my water quota. I take pain meds but honestly don't feel they do much. Trying to stay positive really helps but yes can be easier said than done. I do feel accepting rather than fighting our pain is most beneficial,don't let it rule us,but accept we will have pain no matter what and then get on being as happy and participating in life as fully as possible. Remembering we will have off days and its ok to scream ,to be cross with it,but then to cuddle ourselves be nice to ourselves and get stuck into what makes us smile .

      Take care of yourself smile

  • Angel91
    Angel91 leanne10524

    Posted

    Finding the right meds can take time, what have they tried you on? Have they put you on pregabalin or gabapentin? They are good for neuropathic pain. There are also NSAID's and Opioids as possibilities... and if you are me? A mix of all three. There are also some antidepressants that can help with pain which might be worth considering.

    As for the side effects, sometimes you need to give it a couple of months to see if things settle down.

    Also, have they tried therapy? Particularly CBT? That can help change the way you cope with pain.

    Also it is worth noting that pain can make depression worse... but the depression can also make the pain worse so you end up in a vicious cycle. So it might be worth increasing (or changing) your antidepressants to see if that helps.

    The pain clinic is a good idea as chronic pain is what they deal with, they know all the tricks in the book that may help and will stick with you until your pain is under control.

    • leanne10524
      leanne10524 Angel91

      Posted

      I was on amitriptyline i ended up in hospital for 3wks, then naproxen i was sick for 3 months im skin n bones now also damage my stomach so i can't take ibuprofen with being sick for days! Then i went on gabapentin and within 2wks i could of hurt my family and myself!! I went crazy.

      I will go pain clinic but at the moment im still clueless to what the future holds. Im 34 with to young children. Is there anything out there that cant help besides medication? Has anyone got better after trying new remedies?

    • leanne10524
      leanne10524

      Posted

      What therapy is CBT and how did it help if you, if you dont mind sharing Angel91
    • derek76
      derek76 leanne10524

      Posted

      Cognitive behavioural therapy (CBT) is a talking therapy that can help you manage your problems by changing the way you think and behave. It is most commonly used to treat anxiety and depression, but can be useful for other mental and physical health problems.

      There is one called Beating the Blues that you can do online.

      You can access Beating the Blues through a referral from your GP or another healthcare professional. You will then call your Beating the Blues Centre to book your first session.

      For the first session you will watch an introductory video that gives you background on the course and tells you more about anxiety and depression. At your next visit you will be able to begin your sessions.

    • leanne10524
      leanne10524 derek76

      Posted

      Thank you for explaining that but i made alot of life changes, mainly because i had no choice but besides the pain and not being able to get about with my daughter's im very happy and content.

      I don't stress about silly stuff like i used to yet pain still gets so bad every 2-3 weeks im still laid up up to 2 months if im sick can last longer to get my strength back.

      Im willing to give anything ago i will mention this to my gp.

  • wommy
    wommy leanne10524

    Posted

    Hi, I just found, by complete accident that ginger, the confectionary one, I took, has had a marked effect for me. Maybe not so much for the pain itself, but for the discomfort from being tingly and numb. It does have an effect on the pain in as much as the panadol I take works better, I can't take nsaids. I found this out 4 days ago by eating half a pack, then the other half next day. I had nothing in mind other than pigging out on it. I got the nerve damage 3 years ago when shingles went into my spine and damaged the covering of the no5 nerve in my left leg and foot. Over this time I have gone from total foot drop and paralysis to 4.5 out of 5 recovery in movement. I do still have the other discomforts. Neuro surgeon said recovery was very unlikely to happen, guess who was super lucky?
    • leanne10524
      leanne10524 wommy

      Posted

      Thank you i will go straight out and give it ago! Glad its helping you 😊
  • alan68537
    alan68537 leanne10524

    Posted

    hi leanne i have been told for last 5 and a half years i had torn muscle (complete tear) muscle wastage and this is on the left hand side of my shoulder and shoulder blades and pain goes all over my bk not just there till recent mri in which this was there conclusion so they send me to a shoulder surgeon who said there is no torn muscle what so ever now this was around a month and half ago then by mistake they made me see another surgeon who backed up the other surgeon who both say i have brochial nuritus and the scan was wrong i have inflamed nerves (bn) which i dunno if its same as yours but dr said also there is no help with it besides pain management well they gave me that b4 they even knew it was bn didnt no nothing nor pyshio nerve test said they was fine shoulder surgeon said dont care what that says it was wrong 100% so went to my dr he gave me gabapentin 1200mg a day well this actually worked wonders till around 8 days ago now hes put me on amitriptyline 10mg for 2 weeks they helping me sleep better but nothing at all for the pain but i have to give these time to work so will report bk on that,if your pain is anything like mine i feel for u i really do this rubbish and messing about is nearly 6 years now so trust me i know what pain feels like,i hope u find the help u r after cos its total rubbish day in day out 24/7 unless i actually get some  sleep so maybe try gabapentin if u havent already or amitriptyline,ive tryed every gel pain killer water bottles sprays even brought chinese herbal stuff nothing has even broke the surface so i wish u gl on pain relief u will have to let us know how u get on,sorry for wafferling but best way to expalin when not face to face gl all the best alan smile
  • ali20330
    ali20330 leanne10524

    Posted

    HI Leanne,

    I hope that things have improved for you  as i can empathise with suffering long-term intense pain that never stops & the medications don't work. I wish i had an answer for you. I just wanted you to know that i underdstand where your head is at.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.