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wondering if i could have an autoimmune disorder

Posted , 5 users are following.

lady40s
lady40s

hi, over past 3 months many symptoms , fly like thing coming and going , tempreture changing , boiling hot , hot finfers forhead then can be cold the next ....sometimes burning sensation on my back , aching joints , fingers toes in the morning , and sometimes a prickerly rash across my torso , goes once iv cooled down and m tired to after doing very little ..

iv had so many blood  tests last week  recently showed nothing  even inflamitory markers came back normal ...except vit D defieency , the doctors , seem to just think its all in my head i think as i get anxious ..

any ideas where i should go from here? of blood tests to look for on my result form to make sure they have checked for certain blood tests to do with immunity ...

any ideas ? anyone had similar ?

thanks 

0 likes, 15 replies

15 Replies

  • Trogford
    Trogford lady40s

    Posted

    I agree with MrsMop, it does sound like menopause, have they tested for this? 

    I have an autoimmune disease called Ankylosing Spondylitis.  You usually find that there is a family history with auto immune diseases and in my case there was.  Did the doctor ask you about your family history?  My AS was confirmed after showing several symptoms, performing x-rays & MRI's and most importantly a blood test for the gene HLA B27.  This gene is associated with inflammatory diseases.  Vitamin D deficiency is again often linked to inflammatory diseases.

    If you really dont think you have been given a fair hearing I would suggest that you pursue a second opinion but definately dont rule out the fact that you could be early menopausal.

  • lady40s
    lady40s

    Posted

    Many thanks , other people have mentioned early menopause , im just 43 ...my mum did go through it early not sure exact age but in 40s ..doctor didnt mention that at all quite dismisive to what it couls be ...just anxiety ....my fingers and toes are def aching when i clench and its this hot raised tempreture thing thats most odd ...any ideas what the hormone thing would look like on a blood result print out ..so many numbers and codes cant tell ...
  • mrsmop
    mrsmop lady40s

    Posted

    The other thing that is a possibility, is thyroid problems.

    https://patient.info/health/hypothyroidism-underactive-thyroid-leaflet

    https://patient.info/health/hyperthyroidism-overactive-thyroid-leaflet

    Here is a general leaflet on blood tests

    https://patient.info/health/blood-test-general-points

     

    • lady40s
      lady40s mrsmop

      Posted

      thanks , they checked thyroid all came back normal ....

      im at a loss to what it could be ...but i know im not right ....

    • mrsmop
      mrsmop lady40s

      Posted

      I'll keep my thinking cap on!

      Vit D deficiency can cause muscle and joint pains.  Are you taking supplements?

       

    • lady40s
      lady40s mrsmop

      Posted

      yes for vit D , was releived found something , but im not convinced thats the real cause , iv been looking up lupus ...? sounds similar symptoms to ... soo confusing ...but no idea if had test fot that in my huge amount of blood tests no idea what the coad would be ...
  • kim23841
    kim23841 lady40s

    Posted

    My initial thought also was that it sounds like early menopause.
    • lady40s
      lady40s kim23841

      Posted

      thanks , i cant also tell if iv had blood tests for hormones either ...so confusing ...iv got a long print out but little good as i really cant interprite much of it ....

      can you be early menopause with no " classic " symptoms ....iv still got periods , no hot flushes more tempreture changing ..

    • lady40s
      lady40s mrsmop

      Posted

      thank you for your help  , iv  just looked , doesnt give a list of symptoms  im not sure, as mine dont really fit with the classic ones ...
  • lady40s
    lady40s

    Posted

    I'm still suffering ... Had hormones checked all ok had lupus blood test all ok... I'm getting no where with my doctor they think I'm just anxious anxiety and this is making me worse ..

    I don't know where to go from here , all I know is I'm not right , I feel tired constantly , temperature fluctiating , occasional heat rash across tummy , disappears once I'm cool .. I just not sure who I should see ... I have had ibs for years but considering could be an auto immune disease like IBD or something .. But with a reluctant doctor wanting to go further I'm not sure what to do ...

  • mary53515
    mary53515 lady40s

    Posted

    have you been checked out for thyroid disease ? 
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