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17 and diagnosed with bih :(

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Guest
Guest

hi im also 17 and woz diagnosed with bih wen i woz 12 they gave me three lumbar puntures tried medication which didnt work then just sent me on my way didnt tell me anything about it so im not entirely sure wot it can do to me. ive still been gettin headaches n feel like my personalitys changed sumtimes i feel like im gona go crazy lol and i dont feel like sociallizin with friends i wish i cud just be how i used to be n relax around people duno if thats to do with the pressure in my brain. well ive rang the opticians and got an appointment for the 20th of may i will probably have to have another LP. any1 else had a lumbar puncture? wot happened after, i was stuck in bed for 2 weeks not bein able to move it woz horrible. some1 write bk to me plz it wud be very gud to talk to sum1 who understands

sophie.

0 likes, 3 replies

3 Replies

  • Babi
    Babi

    Posted

    i feel so sorry 4 u

    Im 15 n this august i will of had BIH 4 2yrs

    i no xcatli wt u feel its reli annoyin

    iv had 2 LPs thy'v bof workd... 4 a shrt tym and i will b avin mi 3rd shrtli

    i h8 them cz i cnt mov 4 ages n im in bed n i cnt c ne of mi m8s... plus thy reli hurt... nt 2 mke em sound nemr scary.. bt i no thy wrk, evn if it is 4 a short tym

    also nobodi undastnds iva so i feel so distant 4rm evry1 bt iv found mking new friends.. thru mi xcisting freinds cn b a ryt old laff....

    dnt gt urself in2 2 much stress tho.... i wnt thru a bad brek-up n mi hed aks broke thru mi medication!!!! wich is a reali bumma

    im slowli gtin bk 2 nrml tho

    hp ur futre is betr!

    x

  • rebeka
    rebeka

    Posted

    hi im so sorry 2 here about both of your experiences, iknow excatly how ye feel! im 17 and i was told i had BIH wen i was 11, i got it from using tytriclylion based medicen. i had 10 lumber puntures and there so sore, no matter wat they say! i spent the best part of 4 years trying 2 recover and im finally getting back on track, it was a nightmare trying 2 live norrmally with those headachs and felling sick and dizzy all the time ust makes you wanna not go out r do anything. i found out i had it becouse i fainted all tha time and had dizzness, and constant headaches, eventully my eye turned in and i had dubble vision from the fluid in my brain. Im sorry 2 hare that ye still suffer from the symtoms and i hope ye will eventully grow out of it lik i did, its a fustrating and horrible thig 2 have.It made me so sick a cudnt get out of bed r eat r do any normall things.

    I know those lumber puntures are realy sore but they help bring down the fuild and then again the headaches. I was told i must get a shunt and my mum refused to let me and then they had to do 10 lumber puncters in the space of 3 months, but now im greatfull as a shunt is for life and can cauxe more problems in the long term,

    I thought ye might benfit from hearing my experiences and it might give you hope, as i thought my life would never be the same anymore and im now just after finishing my leaving cert and im off to crete with my freinds next week. Dont give up hpoe, theres light at the end of the tunnel.

    I wish ye the best for the future.xx

  • mam
    mam

    Posted

    hi sorry to hear you are unwell my 5 year old son has just had a shunt fitted 2 weeks ago he is like a different child he still has bad days with low pressure headaches and vomiting and we just live day to day but its better than b4 when he just couldnt do anything becouse he felt so unwell hope you find our experience usefull and good luck.
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