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So iv been diagnosed with Acute Sacoidosis as of last Thurs. Started with ankle pain in right ankle in Nov. gradually got worse and spread over Christmas to both ankles and my knee's. My ankles swell so big I was unable to walk or make it up steps without been reduced to tears. I was put on Ani-inflammatries for suspected Rheumatoid Arthritis which did not work when i returned to My GP who then sent me for bloods and a scan of the knee and ankle, they both came back clear from suspected Arthritis. I was then forwarded to the Rheumatology clinic for further testing as my GP felt this was the next best option for me. I had Bloods & Chest xray done by them and then waited 3weeks for results which i was put on a course of steroids in the mean time to help ease my swelling and pain. These did nothing and if anything i got worse over the 3weeks waiting to be seen.I have severe pain in both of my knees , lower legs and ankles. When i went back i was convinced there was nothing wrong as they said they would call if anything serious popped up, both of my tests came back positive. There are Large lymph noids found and the bloods tested positive for Sarcoidosis. I am back again in May for a check up, i am awaiting CT of my lungs and a camera down my nose/throat before im back in May hopefully. I was put back on to Anti-inflammatries for 7weeks 120g Arcoxia 1week 90g Arcoxia 6weeks. My syptoms are still the same and some days are alot worse than others yesterday and today i am bed bound with pain and shooting pains when i walk.Swelling has gone thank god but the pain remains and does show any signs of easimng or leaving me. I can not sleep properly, i have sweats through the night, burning up. This week i have noticed blurred vison alot and even as i write this i have it but i also get this when i have Mirgraines so not sure its completely related to this.
I appreciate any support on this as it so difficult specially as it is my legs and i am a Hairdresser, which i left to go back to college to become a makeup artist. Im near the end of my course but im finding it difficult to continue with the pain and except the harse reality that i wont be able to get straight back into work when i finish the course.
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