1. Community
  2. Chest and lungs
  3. Pulmonary Fibrosis

50 year olds

Posted , 5 users are following.

wayne63
wayne63

i am a 51 year old male who as had pf and copd for two years now and im looking for any off a similar age group 

0 likes, 7 replies

7 Replies

  • alan75679
    alan75679 wayne63

    Posted

    Sorry i missedthe first email Wayne so dis-reguard my reply .....i am now 70 if thats not  too old for you to chat , i had mine for about five years  , but diagnosed 4 years ago , mine has become a pain in the posterior now  because im limited to absolutely nothing .... except  what i want to do  ha ha , i can no longer walk more that 10 ft  with oxygen without gasping for breath, spend every 6 weeks 2 weeks in hospital ,, lets go from there with your reply ....alan
  • KevinPS
    KevinPS wayne63

    Posted

    Hi Wayne 

    58yrs old diagnosed IPF in last year, suffered 2 years before with undiagnosed.

    So far lost over 60% of lungs and needing double lung transplant.

    • wayne63
      wayne63 KevinPS

      Posted

      sorry to hear that im not that bad yet ..im under aintree hospital there very good there  where r u being treated

       

    • KevinPS
      KevinPS wayne63

      Posted

      Hi Wayne

      Diagnosis and monitoring at The Royal Brompton,& Harefield for future transplant.

      Both hospitals are specialist and have staff that are very different from usual hospitals.

  • trucker1963
    trucker1963 wayne63

    Posted

    Hello Wayne im the same age as you 51, and will be 52 in feburary next year, i was diagnosed with Mild copd in Jan 2009 and now 5 years on it is now moderate copd according to the hospital, how are you coping with the disease and what stage are you currently at ?     John
  • lilannie2
    lilannie2 wayne63

    Posted

    Hi Wayne! I also have copd and pf. I'm 57. Do you ever have lung pain and a lot of dry coughing? I don't have a pulmonologist and so I do not really know how long I have and am scared! I feel for you, my friend!!! May God bless us!!!

     

    • wayne63
      wayne63 lilannie2

      Posted

      hi lilannie yes i get lung pain mainly if i over doin things.i dont have the dry cough but do av a cough . i am on a trail for a new drug from the u s a called nintedanib.iv been on it for two week and its just kicking in the side affects i mean . its surpose to slow down the progress off the ipf fingers crossed .im under fazerackly hosp . and dont be scared there are people out there that will help you . chin up and i sure god will be keeping an eye on us fingers crossed 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.