50 year olds

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i am a 51 year old male who as had pf and copd for two years now and im looking for any off a similar age group 

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7 Replies

  • Posted

    Sorry i missedthe first email Wayne so dis-reguard my reply .....i am now 70 if thats not  too old for you to chat , i had mine for about five years  , but diagnosed 4 years ago , mine has become a pain in the posterior now  because im limited to absolutely nothing .... except  what i want to do  ha ha , i can no longer walk more that 10 ft  with oxygen without gasping for breath, spend every 6 weeks 2 weeks in hospital ,, lets go from there with your reply ....alan
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  • Posted

    Hi Wayne 

    58yrs old diagnosed IPF in last year, suffered 2 years before with undiagnosed.

    So far lost over 60% of lungs and needing double lung transplant.

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    • Posted

      Hi Wayne

      Diagnosis and monitoring at The Royal Brompton,& Harefield for future transplant.

      Both hospitals are specialist and have staff that are very different from usual hospitals.

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  • Posted

    Hello Wayne im the same age as you 51, and will be 52 in feburary next year, i was diagnosed with Mild copd in Jan 2009 and now 5 years on it is now moderate copd according to the hospital, how are you coping with the disease and what stage are you currently at ?     John
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  • Posted

    Hi Wayne! I also have copd and pf. I'm 57. Do you ever have lung pain and a lot of dry coughing? I don't have a pulmonologist and so I do not really know how long I have and am scared! I feel for you, my friend!!! May God bless us!!!

     

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    • Posted

      hi lilannie yes i get lung pain mainly if i over doin things.i dont have the dry cough but do av a cough . i am on a trail for a new drug from the u s a called nintedanib.iv been on it for two week and its just kicking in the side affects i mean . its surpose to slow down the progress off the ipf fingers crossed .im under fazerackly hosp . and dont be scared there are people out there that will help you . chin up and i sure god will be keeping an eye on us fingers crossed 
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