Abdominal enlarged lymph nodes and Sarcoidosis

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Hello, my name is Martina. I am 52 years old. Recently I was diagnosed with suspicion of Sarcoidosis. After the removal of the gallbladder, histopathological examination showed that: material contains the characteristics of lymph node "reactio sarcoidalis". The Computer Tomography showed the presence of interstitial fibrosis and single finely nodular changes in lungs. Also I have enlarged abdominal lymph nodes. My question: is it Sarcoidosis? Or can it be something worse? Please help, thanks.

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  • Posted

    Marci it sounds pretty close to sarcoidosis to me. Im no physician, but it sounds a lot like mine. I have a lot of the same issues. It took 5 yrs to get a definitive diagnosis.

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  • Posted

    Marci

    Best persons to answer that question is the medical profession.

    A biopsy is the only way of getting a true disgnosis.

    Also you may have more then one issue at hand to be identified.

    That has been true in my case and in many others on this website.

    Hope that is not the case for you.

    Dose sound like sarcoid though.

    Seek your answers from the doctors. Especially a respiratory specialist.

    Regards

    Tangles.

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  • Posted

    Hi Marcia

    I can only reiterate others comments and get a medical diagnosis. Many symptoms are similar to others and it's easy to get caught up in researching things and your mind going into over drive. I appreciate you want to know now and medics don't always go at the pace we want them to. We are here if you want to share your thoughts

    Best wishes

    Nicola

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  • Posted

    Hi Martina,

    as others have said, it does sound like sarcoidosis. Since the histopathological examination showed that it is "reactio sarcoidalis", it should be sarcoidosis. And no, lymph nodes due to sarcoidosis cannot be confused with cancerous nodules (I guess, this is what you had in mind when you asked, "Or can it be something worse?"). I know this because when I was diagnosed with thyroid cancer, I asked my doctor and she said that cancerous nodules cannot be mistaken for lymph nodules caused by sarcoidosis.

    However, the interstitial fibrosis in your lungs shows that sarcoidosis is quite advanced. You should see a good pneumologist as soon as possible so that he/she can prescribe the right treatment for you. If sarcoidosis is still active, it may cause more fibrosis; once lung tissue is affected by fibrosis, the damage cannot be reversed. 

    I hope it helps...

    Take care,

    Magda

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