Any tips for new diagnosed?

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Hi everyone. I would love to find more active support groups. Does anyone know of any? I was just diagnosed July 5th 2022. I have had 2 rounds of Iv Rituxin and still on prednisone. I have lost alot of my hearing before I was diagnosed. Doctors dont think I will recover it back. Has anyone else lost their hearing? Also does the mucus from the lungs EVER STOP? Its so gross!


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    Hi Natalie,

    Sorry to hear about your hearing loss. Have you found any other forums that help with advice?

    How did your doctor confirm diagnosis? I have very high PR3 but my ANCA changes. Having lung and throat issues.

    Thanks and hope you are feeling better-


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