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Anyone got bone sarcoidosis??

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AmandaPC
AmandaPC

Hi all, 

Just a quick question, has anyone got bone sarcoidosis?

I have had lumps down my shingetting bigger in size for over 3 years. They are under the skin. If anyone knows of my history that I have wrote on here then you all know I have sarcoidosis in a few places. But this is something that is concerning me lately. They are sending me for ct to confirm sarcoid but I'm so use to the ache in my leg now I just live with it. 

0 likes, 6 replies

6 Replies

  • Nickademus
    Nickademus AmandaPC

    Posted

    Didnt know it went into bones. I thought it went into tissue. If they are lumps on the bone they must be attached  or are they in the skin tissue of your leg? Just a thought.....
    • AmandaPC
      AmandaPC Nickademus

      Posted

      Well it's down at the side of the shin bone, but my specialist told me that it could be bone sarcoidosis. They are lumps under the skin. 

  • Nickademus
    Nickademus AmandaPC

    Posted

    my apologies
    • AmandaPC
      AmandaPC Nickademus

      Posted

      No need to.apologise it's grand. I just wish I knew more about what it was just have to wait for results from when I get the ct 

  • Big_Mack
    Big_Mack AmandaPC

    Posted

    I have bone and lung sarcoidosis, not currently on any medication but I do follow up with my doctor and have pulmonary tests done and do good with them. Recently my liver enzymes were elevated and had an MRI.... I have a congested looking liver so I just had a biopsy on liver... waiting for results.

    Amanda have you ever had a bone biopsy done? 

    • AmandaPC
      AmandaPC Big_Mack

      Posted

      Ah you have it? And where do you have it? Is it lumps? My left leg especially really aches alot and even.clothes make my.shin sting.

      No I have never had one. I had a bone scan dexa scan. 

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