Anyone w IH have Shortness of Breath, Sweating, Anxiety, Tachycardia as a Symptom ?

Hi Gary, You are not alone. Since being diagnosed I have felt many of the same symptoms you have described, even down to the tender spots! I thought that my shortness of breath was down to my asthma, but it is just like yours. I have spoken to another sufferer and she also complained of the sweating and also, like myself the feeling of absolute chilling cold, even if it is really warm outside. Also, do you have trouble sleeping? I am finding that many nights my sleep is disturbed or almost nonexistent.

Hi Gary

Sorry you are suffering with this as well.

Before I put on a lot of weight and began getting IIH symptoms, I had some problems with my heart. unexplained pain, racing heart, palpitations, general anxiety, cough and shortness of breath. I still have all these things now plus the IIH.

I have refferred myself to clinical psychology as after 3 years of this I have to be honest with myself in that I dont know if the racing heart is a symptom of chronic stress and anxiety due to being so ill... This anxiety and stress is so deep rooted that "I dont even feel stressed or anxious".

My IIH stuff can be positional, and I often get the urge to lay on the floor, but it varies so much day to day or week to week.

My temp and sweating are all over the place. Sometimes I am freezing other times I am boiling.

I feel like I am living in a dream world.. like you say- brain fog. I am no doctor but there isnt much room in our skulls and I assume the pressure MUST affect general brain function.

Do you get light headed at all?

Kind Regards

Harriet

p.s

Techincally speaking, with IIH, things should be better when standing up, due to natural gravity actually pulling down the excess fluid.

Which is why after a lumbar puncture laying flat helps because there isnt enough fluid and so the gravity draining by standing up makes it worse.

Maybe your autonomic system is a bit out of sync, and your BP is falling when you stand up?

Before being diagnosed with hypertension, I was diagnosed with neurocardigenic syncope. Because of the latter, I have all of the same symptoms everyone in this discussion was complaning about. I have done some research and found that intracraneal hypertension can cause neurocardiogenic syncope as the pressure in the head is pushing a lot of blood out. The hypertension would not cause problems positionally, but the syncope can cause some major problems. I'm not a doctor and I do not know your full situation, so I can not say that it is definitly syncope or another form of dysautonomia. With synocpe, I can only stand for ten minutes on the best days before I get close to passing out. There are some days when I cannot stand at all. My recommendation is to read through dysautonomia as there are different kinds and measure the difference in your blood pressure upon changing positions. It is quite common for people to have multiple issues as the body is a single system and one problem leads to a chai reaction.