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are froums helpful in regards to finding information about Mastocytosis?

Posted , 2 users are following.

damien92480
damien92480

I'm a year 12 student who has chosen to do "Mastocytosis" as my topic for my research project I just wanted to know by some people here if they think that forums are helpful in regards to finding information about Mastocytosis?

thankyou smile

0 likes, 2 replies

2 Replies

  • gail90888
    gail90888 damien92480

    Posted

    Absolutely! When I was first diagnosed with Mastocytosis and Mast Cell Activation Syndrome, I had never heard of it. I got a lot of good information from forums/support groups on how to care for myself, how to talk with my family and doctors, and much more useful information. Best of luckconfused
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