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Bilateral Pulmonary Fibrosis

Posted , 4 users are following.

Chrissie_1975
Chrissie_1975

my dad was digonised with Bilateral Pulmonary Fibrosis in august 2011, and really i just want to know what is going to happen, the time frame, the different stages.

when he was digonised the specialist told us that it was quite server, since then he has gone down hill.He can't walk move than a few steps with out stopping, cause he's out of breath, he can't walk up any stairs, his legs have swollen and are leaking really bad he also has ulcers on his legs now, he's unseady on his feet (this week he has fallen over 9 times) he's weak now can hardly use a knife and folk..........

he's on oxygen 24/7, has a nebulizer, steroids, morphine(oral and tablet form) and other medication.

1 like, 4 replies

4 Replies

  • malcolmw
    malcolmw

    Posted

    it seems to me that this discussion forum is not helping very much. I belong to a much more active discussion group at www.tinyurl.com/pfuk123

    This is a yahoo group which has been averaging over 40 emails a day this year.

    I am one of the lucky ones. I was diagnosed in 2006 and am still able to go ballroom dancing, tenpin bowlng, and attend a keep fit class. But there are many people who are suffering as much as your father.

    Has you father been tested for Pulmonary Hypertension?

    Hope you can get some help from others,

  • Remo3
    Remo3 Chrissie_1975

    Posted

    My mother was diagnosed with IPF in 2012, a so-called incurable disease. In March '12 her gasometry went down to 57% (= 89 % oxygen saturation rate). The CAT-scan showed "honeycombing and thickening". She then started to take every day:

    - 7500 IU vitamin D,

    - 640,000 U serrapeptase, an enzyme that cleans scar tissues.

    - 4 grams curcumin + peperin, a natural anti-inflammatory.

    The  October 2014 CAT-scan, 6 months into this "treatment", shows things have improved. Her gasometry has gone up to 77% (= 95% saturation rate) with "fewer ground-glass opacities [...], no increasing of reticulation [...] and no honeycombing.")!

    Her pneumologist told her vitamin D was excellent but confessed he had never heard of serrapeptase which, I think, has done the entire job. So don't lose hope. I'm not saying it will work miracles for you but it has shown some effect on my mother, so why not give it a try?

    Feel free to contact me if you have any questions.

    • swastya100
      swastya100 Remo3

      Posted

      My earlier question was meant for Remo3 -

      Hi Remo3, 

      Could you please indicate the dosage & the brand of Serrapeptase used? Did you mother have any side effects, was she using other prescribed medications along with Serrapeptase?  My mum has been diagnosed with the same. Hope it works for her too. Thank you very much for all inputs.

  • swastya100
    swastya100 Chrissie_1975

    Posted

    Hi chrissie,

    Could you please indicate the dosage & the brand of Serrapeptase used? My mum has been diagnosed with the same. Hope it works for her too. Thank you.

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