Posted , 4 users are following.
*Sorry for graphic details*
My husband has had Wegeners for 15 years now, he was diagnosed when he was 17 years old. He had his first relapse in 2013 and they started him on rituxian and methotrexate.
He has weaned himself off both and has been doing well, despite the full hip replacement 2014 due to all the steroids... fast forward to just the other day, he was at work and noticed blood coming from his penis. It was in his stream and when he wiped it was on the toilet paper. I told him to go to the ER and I met him there. I kind knew they weren't going to know what to do bc of his disease...they discharged us and told us to watch it and follow up with his specialist, which we are but can't get in till November, even after explaining the situation...I'm nervous and scared at what this could be, is it the wegeners or worse is it cancer?
Has anyone had this experience?
Nov is such a long wait to see his rheumatologist and then we will most likely have to see the urologist, make another appointment and wait!!
Any insight on this would be helpful!
0 likes, 10 replies