Blood results are fine but always sick

Hello jo 49517

I cannot recall that being constantly sick is a common symptom.  Feelings of nausea perhaps but these usually subside after a while and the system settles down. The different infections are possibly due to your immune system being weakened as is often the case with PV and the treatment you receive.   Hydroxycarbamide (Urea) can provoke some uncomfortable side effects but these will subside fairly soon and many people do not find any symptoms at all.  It is all a matter of your personal biological system.  However, in the longer term one needs to keep a close check with Hydroxy as symptoms can become uncomfortable if the dosage is substantially increased over time.   As a matter of interest what was the treatment you were receiving before you commenced with this medication.  From what you say your blood tests are controlled but it appears you may just have something else in your system which doesn't agree with you.  It deserves to be checked further and I would venture to suggest that most patients would follow this up with their medics who would find another medication to offset this sickness.  You should not be sick to be healthy.  It is bad enough having to contend with a serious blood disorder without having the concerns of another unwelcome symptom.    Maybe  once the Hydroxy has settled down to a routine things will improve but if your malady doesn't decline then seek more advice medically.  Perhaps other patients have suffered similarly and will reply to your queries.   I have never been troubled by nausea in all the time I have been treated for PV.  If necessary seek another Haematologist's opinion..  Good luck.