Came off lansoprazole - help!!! Worse than ever.

Posted , 6 users are following.

Hiya,

I'm writing this for my husband. He is 28 years old and has been on lansoprazole for about 7/8 years. He first started on them after an acute episode of acid. He came off a few months. A few months later his symptoms returned and the doctor put him back on them. After this if he has tried to come off, he has terrible rebound symptoms, so the doctor said he should continue taking them indefinitely. His kidney function has decreased slowly during his time on them and doctors have always dismissed this. He began feeling very fatigued, feeling sick, loss of appetite, so he went to the doctors. They did a blood test and it revealed his kidney function was at 57%. We made the link between lansoprazole and chronic kidney disease. He has to have s blood test in January to see if his kidney function still remains low, if it dies, he will be officially diagnosed with chronic kidney disease. He has weaned himself from 30mg to 15mg for two weeks and was fine. He stopped altogether and started ranitidine 150mg twice a day for 10 days. He got to the point where he had horrific bloating, gas, loss of appetite, sickness, his stomach was in pain too. He has had to go back on lansoprazole 15mg through not being able to bear it. He has been on them again now for 3 days and feels awful and they haven't worked like they did before. We feel stuck as to what to do to ease symptoms, as we don't want any problems with ulcers etc but also don't want to further damage his kidneys. Any advice would be much appreciated. Thank you.

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  • Posted

    hiya Kirsty

    There are a number of PPIs one can use so it is best getting back to the doctor.

    though one of them is general sale (so no dcotor or pharmacist appointment needed) which is Nexium so maybe worth switching briefly.

    but lansoprazole is not the be all and end all. nexium can be tried without a doctor and other ones are available on prescription plus ask (they wont do it unless asked, usually) for a camera down his throat.

    it will get better so dont worry 😃 They just need to get on top of the reason why and on top of the acid.

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  • Posted

    the best product i have found that helps with the acid rebound is Gaviscon advance. If you are unfamiliar its not a medication but it prevents the acid from coming up from the stomach into the esophagus. its the only thing i have found that gives real relief. good luck

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  • Posted

    im having problems with them as well ive got thinning bones because of long turm use ive tried coming off them but its Impossable to reduce them just by a little om so worried and the affects this is having on my body

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  • Posted

    hi kristy i can understand your situation very well cos i am in same condition . i am 28yr male . i had no issue prior to taking this drug . never had any stomach pain or acid . i took this drug for 4 weeks when came off i started experienceing hyperacidity . i went to doc and told him . he should have told me about rebound acid at that time it was possible to come off with little bit suffering but instead he gave me more. i don't know anything about rebound so i blindly took this med again . when i knew that the med is the main problem it was too late. i took it for 2.5 years . my kidney funtion is down as well. platelate count is down to a level that i was bleeding easily . throat got damaged coz i was regurgitating all time. at this point i took a decision that i will not take this poison anymore .

    so i stopped taking ppi and substituted it with zantac. its six months now i am taking zantac. at the beginning i took 3x150mg . the after 2 months got down to 2x150mg zantac and still taking it.

    i know zantac is also not good but what option do i have ? but in this 3months all my issues are solved apart from stomach pain. i know i have ulcers now.

    its very scary situation to know i am dying gradually . 3 years ago i was playing football every morning and now i am spending most of my time on bed . lost my job.

    i worst mistake is believing in doctors. i should not have taken those poison. i regret every second why i took those. needles to say i don't believe in doctors ,not anymore. its just a bloody business . they hook people on these drugs , and fetch money till the day patient dies, some people though very lucky they can get out of these drug.

    how long do you think people like me will live by regularly taking these ****. at 28 right now . i am in pain 24x7 but still trying to come off . i will try natural doctors and homeopathy and pray to god if somehow i can escape this vicious circle

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  • Posted

    It's an evil tablet. I was on 30mg for almost two years, and my doctor said " Just stop them ", when I asked to come off them. I'd expected to get a lower dose first. Just over 7 weeks later and some days I have acid all day, sometimes only from tea time. I can't eat tomatoes, any fruit, cheese or bread. Some days I live on antacids. I went onto the forum, I suggest that you look for it, it's made me realise that my symptoms are normal. One person still can't eat certain foods 7 months later. The tablet reduces calcium intake, so you could end up with osteoporosis. It reduces vitamins being absorbed, as well. Over 60s put weight on with it. My suggestion is go and see your chemist, and speak to the person who dispenses tablets, I'm going to visit mine next week. Chemists are almost as qualified as a doctor, and they have time to listen. If not 111, is the NHS number, to ask, if you're in the UK. I take probiotic yoghurts every day, that will help. About day 7 or 8, the pain in my stomach was really bad, like someone was twisting a knife in there. The pain is okay now, but my stomach still is bad. Stick with the bad times, hopefully they won't last forever. The tablet should be banned.Please don't take them again, Lansoprezole are evil.

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    • Posted

      i agree with that part these tablet should be banned . before they came no one suffered like the way ppl are suffering now . 20mg to 60mg , 60mg to 80mg . and what after that? dependency is no secret anymore . ppl who take them more than 3_6 months are hooked foreever . loosing organs in process . you are lucky though you don't take them anymore . i am not i take 2x150mg zantac every day and still suffering painfully

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    • Posted

      It's a horrendous drug. It seems that doctors are more interested in treating the symptoms rather than finding the cause of a problem, so they will sling you on tablets that cause horrendous side effects with no follow up. This group of drugs are dangerous and doctors need to be more cautious in how they prescribe them.

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