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I have been having heart issues for a couple years now. Since May, they have gotten worse. I have zero exercise tolerance, palpitations that worsen if I bend over, shortness of breath, tachycardia, lightheadedness, etc. I have calcified granulomas on my lungs but they say they are fine. My ekgs show sinus arrythmia but nothing else yet. my echo was pretty normal and my calcium score showed a score of zero. Cardios say sarc would be in lungs, not isolated to heart and that my tests would be abnormal. No diagnoses has been given in all this time and this is my last avenue based off a friend who has cardiac sarc with the same symptoms. they have not done mri or pet and do not seem determined to do them. I am almost bedridden though and cannot keep up with my kids. What do you all think I should do next?
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