Cardiac sarcoidosis fear

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I have been having heart issues for a couple years now. Since May, they have gotten worse. I have zero exercise tolerance, palpitations that worsen if I bend over, shortness of breath, tachycardia, lightheadedness, etc. I have calcified granulomas on my lungs but they say they are fine. My ekgs show sinus arrythmia but nothing else yet. my echo was pretty normal and my calcium score showed a score of zero. Cardios say sarc would be in lungs, not isolated to heart and that my tests would be abnormal. No diagnoses has been given in all this time and this is my last avenue based off a friend who has cardiac sarc with the same symptoms. they have not done mri or pet and do not seem determined to do them. I am almost bedridden though and cannot keep up with my kids. What do you all think I should do next?

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  • Posted

    hi jennifer

    pleasecread my previous email replys and see if you can benifit from them

    urgently look at i troducing herbal teas specially nettle and thyme, basil, rosemary may be mixed or individually which ever benifits you the most.

    start slowly with excercise and build up to walking 100 meters then over a few weeks more and more

    this worked for me i hope and pray it helps you

    FARHAN

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    Sorry to hear that Jennifer. This may not be of much help, but I've had the same symptoms that have seem to gotten worse over the years.They never find anything during the test that I have. However I have noticed that my symptoms seem to get better with exercise. Have you had an echo-cardiogram on a treadmill yet?

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